Jump to content

Dale

Members
  • Content Count

    11
  • Joined

  • Last visited

Community Reputation

0 Neutral

About Dale

  • Rank
    Member
  • Birthday 09/24/1983

Contact Methods

  • Website URL
    http://
  • ICQ
    0

Profile Information

  • Gender
    Male
  • Location
    Lancaster,Pa

Recent Profile Visitors

1,072 profile views
  1. My blood pressure has been getting as high as 190 over 164 and as low as 86 over 50 over the course of a few hours it goes real high then real low. I'm on a beta blocker shouldnt it be preventing this from happpening? And am I at risk with numbers like that? Also ive been expeirencing some of the worst palpations Ive ever had and they are occuring at night time when im laying in bed. They seem to be different then my usual palpations my heart actually stops beating for a second or two and then it starts jumping out of my chest and last for up to 5 minutes. Its scary it feels like its going to
  2. My girlfriend happens to be type 1 diabetic and she tested my blood sugar 3 days ago and it was 176 and 154 today. I told that to my doctor and he told me not to eat anything after 10pm tonight and test my blood sugar 1st in the morning and if its above 120 then call him.
  3. Sorry it took so long for me to respond I've been really feeling under the weather to say the least. Dr Stewart did test me for lyme it showed positive antibodies but the bands are still pending. He is not my dr I just participated in some of his research so he wont discuss anything with me. He just sends his findings to my primary care physican who hasnt received the rest of my labs yet which is a joke anyway because he knows nothing about POTS or CFS he couldnt even interpit the letter from dr Stewart and to make matters worse hes one of many doctors who think that when you get lyme disease
  4. Thank you all for your support! If this is the cause of my problems i'll do whatever it takes to make it public knowledge even if I have to contact my local news station. More research needs done reguarding lyme and dysautonomia. My neighbor was diagnosed with all kinds of stuff like chronic fatigue fibromylagia he had brain lesions...His dr said it was all comming from either lyme disease malaria or some sort of parasite infection it didnt matter which one because the treatment is pretty much the same. He even treats people when their labs are negative based on history and symptoms plus he ru
  5. I know about the hepatitis C because my neighbors doctor is one of the doctors doing the trial of alinia for hepatitis C he found that its not only curing hepatitis C but its helping aids patients improve there liver function and now its curing lyme disease and chronic parasite infections. The only bad part about it is hes not accepting new patients so I need to try to find a doctor who either knows how to treat lyme disease or try to convince my doctor to put me on the 3 meds that cured my neighbor. When I first got sick I suspected lyme disease but I had a negative lyme test done so I ruled
  6. I just got some of my labs back from dr Stewart and I tested positive for lyme disease I'm calling my dr for an appointment first thing in the morning. The funny part is I could have swore that I've been tested for lyme disease before and it was negative.And whats even more funny is my neighbor who just happens to live right next door to me got sick in 2001, the same year that I did when he was in Florida which is where I lived and where I got sick and diagnosed with chronic fatigue syndrome. Now we live in Pennsylvania and are neighbors. Anyway hes been sick with all the same symptoms as me
  7. Dale

    Help

    Yes i'm sensitive to medications but klonipin works wonders for me for some reason... I do not have hypermobility.
  8. Dale

    Help

    Wow Thats cheaper then it would be with insurance.... Thanks for the link. I'm so happy I found this website! I can finally talk to other people who truely understand what i'm going through
  9. Dale

    Help

    Propranonal is what I was on. I didnt even know that CostCo offered prescriptions without insurance coverage so thanx!
  10. My name is Dale and I was recently diagnosed with POTS by Dr. Julian Stewart at the center for hypotension in New York. I participated in his CFS/POTS study because I was diagnosed with Chronic Fatigue Syndrome when I was 19 at The Mayo Clinic flollowing a one year Chronic EBV infection.I'll be 26 this year. He said I had some very unusual findings and some of the most peculiar data seen so far in such patients. I have a normal BMI but appear thin. During H.U.T. I had a 30 percent reduction of cerebral blood flow to my brain which was associated with a large degree of hypocapnia. Hr increased
×
×
  • Create New...