CJMANN1

I haven't had anything as bad as you, but something close. My heart rate drops in the 50's during the day time and even lower at night while I am sleeping. And when that happens my blood pressure drops too, like 68/42. I hope you feel better! Jeni

Thank you! I am seeing a very good DR and am trying to plan a pregnancy very carefully. I really appreciate all of your input.

Sorry it has taken me so long to respond...I was in the hospital. But thank you to all of you for your info. I had an ablation done on my heart 9 years ago and have struggled every since.

Just wondering if everyone with POTS has heart problems? Or some other form of healt problem that can be related? Thanks, Jeni

Sorry it has taken me so long to get back to you. I love my magnets. I truely believe that they have helped me. So does my husband. He even uses them now. I use a magnetic pillow, comforter, wear a magnetic necklace and have a few mini magnets and another one that I use on my horses too. I don't know what I would do without them. Really...I went from 2 solid months of not even being able to function to now leading a "fairly" normal life with minimal episodes. And I don't have just POTS. I have many other health problems too. Also I take a vitamin from the same company. I have only had this positive of a result from one brand of magnets and I have used many. If you need more info please let me know. Jeni

Thank you all for your input. I really appreciate it! Does everyone with POTS have heart problems? Some of my concerns with pregnancy is not just the POTS, but I also have a kidney disease and of course heart problems. I did have surgery for the heart in 1996, but have been really sick every since. thanks!

HAS ANYONE OUT THERE BEEN PREGNANT WITH POTS? ANY INFO WOULD BE GREAT. THANKS

I AM MEDICATION FREE. MY BODY DOES NOT HANDLE ANY MEDICATIONS WELL. I USE TO TAKE FLORENIF, BUT I WENT OFF IT ON MY OWN. MY DOCTOR TOLD ME NOT TO, BUT I COULDN'T HANDLE WHAT IT WAS DOING TO MY BODY ANYMORE. SO......I DECIDED THAT I WOULD TRY WHAT I COULD FOR MYSELF. I TAKE A VERY GOOD MULTIVITAMIN AND SUPPLEMENTS I TRY TO EXERCISE SOME...EVEN A LITTLE I USE MAGNETS AND THEY HAVE HELPED ME THE MOST! I TRY TO CUT MY CARBS AND SATURATED FATS BACK BUT NOT TO STARVE MYSELF. I HAVE A VERY HIGH SALT AND WATER INTAKE I TRY TO PAY CLOSE ATTENTION TO WHAT MY BODY IS TELLING ME.......IF I HAVE A CRAVING FOR SOMETHING I TRY TO FIGURE OUT WHAT AND WHY MY BODY IS CRAVING IT. SOMETIMES I DON'T TAKE IN ENOUGH SALT OR WATER AND I CRAVE POTATO CHIPS ETC.... INSTEAD OF EATING THE CHIPS I WILL EAT A BUNCH OF SALT AND DRINK 2 GLASSES OF WATER. MOST OF THE TIME IF YOUR BODY GOES THROUGH REALLY BAD CRAVINGS YOUR BODY IS TRYING TO TELL YOU SOMETHING. AND I GET LOTS AND LOTS OF REST EVEN IF THAT MEANS SITTING OR LAYING DOWN FOR 15 MINUTES TO AN HOUR WHEN I GET HOME FROM WORK. I WOULD REALLY SAY LISTEN TO YOUR BODY AND PAY CLOSE ATTENTION TO WHAT YOUR BODY IS TRYING TO TELL YOU. AND LIKE I SAID BEFORE THE MAGNETS HAVE BEEN WONDERFUL FOR ME. BUT YES......I BELIEVE THAT THERE IS A WAY TO BE MED FREE.

I AM NEW TO THE FORUM AND AM GLAD THAT I FOUND IT! I HAVE BEEN SICK SINCE I WAS 19 AND NOW I AM 28. I CAN FEEL REALLY GOOD AND REALLY BAD IT GOES UP AND DOWN. IN THE PAST YEAR I HAVE REALLY TRIED TO CONCENTRATE ON WHAT I WAS DOING AND WHAT MY BODY WAS TRYING TO TELL ME. MY DOCTOR PUT ME ON FLORINEF AND I HAD A HORRIBLE REACTION TO IT! SO I WENT OFF ALL MEDS AND AM TRYING A HIGH SALT AND H2O INTAKE, TRYING TO EXCERCISE A LITTLE BIT EVEN IF IT'S JUST WALKING AROUND THE HOUSE, I AM TRYING TO CUT BACK ON THE CARBS AND I HAVE FOUND A WONDERFUL VITAMIN SUPPLEMENT THAT I TAKE ON A REGULAR BASIS. THE OTHER THING THAT HAS REALLY SEEMED TO WORK FOR ME IS MAGNETS. NOW I'M NOT SAYING THAT THEY WILL WORK FOR EVERYONE, BUT THEY HAVE SURE SEEMED TO HELP ME OUT. AND YOU SHOULD DEFINATELY ASK YOUR DOCTOR ABOUT IT BEFORE YOU TRIED IT, BUT I WAS AT THE POINT WHERE I WOULD HAVE TRIED ANYTHING. I ONLY USE ONE PARTICULAR KIND OF MAGNETS, BUT ANYTHING IS WORTH A SHOT.

I AM VERY LUCKY TO HAVE THE SUPPORT FROM MY FAMILY AND MY HUSBAND IS REALLY GREAT ABOUT IT. HE ALWAYS PAYS CLOSE ATTENTION TO WHAT'S GOING ON WITH ME AND IF I GET SICK HE GETS ME SAT DOWN OR LAYED DOWN. I'M SORRY YOU HAVE TO GO THROUGH ALL OF THAT WITH YOUR FAMILY THEY SHOULD BE SUPPORTING YOU.

I AM NEW TO THIS WEBSITE AND FORUM. MY HUSBAND GAVE ME THE INFO AND TOLD ME I SHOULD CHECK IT OUT. I TOO HAVE SHORTNESS OF BREATH AND HAVE HAD IT FOR ABOUT 5 YEARS WHICH IS ABOUT THE SAME LENGTH OF TIME I HAVE HAD POTS. IT FEELS LIKE I AM TRYING TO BREATH THROUGH THE TIP OF A PEN...LIKE I JUST CAN'T GET A REAL GOOD BREATH. I HAVE HAD SOME BREATHING TESTS DONE AND THEY ALL CAME BACK NORMAL. MY BREATHING PROBLEMS COME AND GO AND I CAN'T SEEM TO ASSOCIATE THEM WITH ANYTHING. I THINK THEY ARE PART OF POTS. IT'S VERY FRUSTERATING ISN'T IT?!