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About Brye

  • Birthday 05/01/1972

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    Hiking, rollerblading, volleyball, soccer, playing with my kids, playing my saxaphone, movies.

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  1. I had my low HR's before I started the BB but when they did start it I was in the hospital on a heart monitor 24 hours a day. I would be careful too about starting with a HR that low when up walking around. Brye
  2. Toll Booth job ... really? HA, You''re not going to relocate for the perfect job in a toll booth? Mine took about 4 months for the approval. Must vary by state. I live in AR. Brye
  3. Sorry, hope the 2nd round will do it for you. Hopefully the disability lawyer can give you some good advice. I was approved based on POTS but I also have a fainting problem because if it. Good luck to all of you struggling with this! Brye
  4. I had brady and tach rhythms since being diagnosed. I had a pacemaker put in recently for rates in the 30's. I take atenolol which controls my tachy rhythms pretty well but was dropping my HR too low. Brye
  5. The papers I submitted that I had the doctor filled out had high risk for syncope written in numerous spots. That's the reason the doctor wouldn't write me a return to work clearance. Liability to let a fainter go back to work apparently. My main diagnosis is POTS. Brye
  6. That is so true, it's like a new normal that's never normal. It's so hard to figure out what not to worry about and what you need to see a doctor for. I feel blessed to have a doctor who has been helpful in treating my POTS. I Always better to err on the side of caution and see a doctor if you're worried about it. Glad she's recovered. Brye
  7. Not something I would ask the nurse (if it is a nurse) to do on an initial vital check for someone with strep symptoms. Maybe they would check if there were increased fainting or dizziness. I would hold off and discuss my concerns with the doctor so he/she could decide what vitals he needs. That's the person who's making the diagnosis and decides what data they need. I guess though it would depend on if you're confident the doctor your seeing will do a complete and thorough exam. A doctor has checked my sitting/standing vitals, never a nurse/tech when checking in. That's just what I would do. I've been sick before and it does definitely exacerbate the POTS so I would expect a faster HR. The treatment for strep is the same though whether my POTS is exacerbated or not. Oh, and as others have said a lot of times it is a tech/cna. Have they even been trained in orthostatic vitals. If you wait til you get to see the doctor the doctor may check or at least maybe a RN. Anyway. Hope all is better and she's on the road to recover. Brye
  8. Normally if sitting/standing BP/HR is needed it is requested by the doctor. For a patient presenting with symptoms of strep it would not be a part of the nurses initial evaluation for most patients. Brye
  9. I had that problem, they checked everything and finally the infectious disease doctor diagnosed mono. I was so thankful that was all it was! Brye
  10. My BP runs really low from my BB. I take atenolol, I've weaned off it as much as I can while still getting some HR control. I also take florinef to help support my BP and midodrine 3 times a day to help keep my BP high enough so I can take the BB. Brye
  11. Congrats! I've been attending a cardiac rehab maintenance class and that has been so helpful. I've been going over a year. It is a little discouraging when the average age is about 75 but they have all been really nice! Keep working at it, well worth it!! Brye
  12. I play the saxaphone and have similar problems. I have to sit for sure and don't have enough breath to hold the notes!! Brye
  13. I think it's up the the individual cardiologist.. My 1st echo my EF was 30%. I had a repeat that was a lot better in the 50's. They did one more after that because I was having some symptoms that had gotten worse and it was normal. I would think if you are getting worse they would consider another one. 55% is low end of normal but if you're feeling worse I would think they would re-check one. I would think maybe a stress test would be helpful if you're having trouble with activity. Brye
  14. My cardiologist filled out a form I gave him. I had a friend who is a lawyer write it up for me. He called it a Medical Source Statement - Physical. He had questions for the doctor to answer ... Ex "What the patient can do despite his/her impairment" and then it has options to check for him. "On average how often do you anticipate that your patients impairments of treatment would cause the pt to be absent from work" Then it gives him choices to check. He filled that out for me. I can snail mail a copy if you want to take a look at it. PM me your address. Not sure how much of a hurry you're in though, I live in Arkansas, may take up to a week depending on where you live. Brye
  15. I'm content with my plain old POTS diagnosis. I've never seen an autonomic specialist specifically. My primary doctor and my cardiologist have been helping with symptom control. I don't feel I need to dig deeper at this point. If my symptoms get worse I would be more inclined to want more details I guess. I have had enough pin cushion time and am content with just POTS!! Brye
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