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rhonda

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Everything posted by rhonda

  1. Not to sound horrible. But I am not one to know.... I pass out and one one of the specialist thinks that I need to see the psychiatrist. So now I suffer in silence
  2. Those are so funny....My favorite one liner is "I always did my best work laying down"... but I have been careful who to tell that to LOL.
  3. I have that happen to. Not sure if this makes sense, but usually I am middle of a word, and suddenly i lack the oxygen to get it all out. I get very dizzy/lightheaded and exhausted from talking. I used to sing lots that is totally out of the question now. It is hard to listen to music and not be able to join in.
  4. That's funny.... I have always had problems with marshmallows. I HATE the sound that they make when people eat them, it is like nails on a chalkboard. It is okay when they are melted, and lose the squishy noise to them. I leave the room when anyone eats them, it is wierd how some things affect others differently LOL Busy places, loud talking, loud music, people moving around me can be overwhelming for me, it is like i am oversensitive to it. I also have a lot of physical pain, and just someone brushing up beside me is severely painful. At first i thought it was just because i was going through the humiliation of being in a wheelchair. But I have made a lot of improvements with that and I know now that it isn't just that.
  5. In a way it is nice to see that others feel the way that I do. I need to vent..... I am not doing well this Christmas either. This Christmas has been very hard because I have spent the past 2 years so sick and hopeful for the "magic pill". Only to learn that it really doesn't exist. Then everyone in the house is so happy around me, i think that they really don't notice that i am here, in bed. I live with extended family. I am such a bother to them. I guess the realization that this coming year will be the same, more health problems, more sickness, more pain, more appointments. It is really hard to face another year of the same. Maybe I am still down because I spent most of November in the hospital. My "friends" were texting me and telling me when they were going to visit me in there, and they all just never did show, still havn't heard back from them. My family wants to take me to one of the family christmas suppers. I can't sit up for that long, plus it is squished and busy talkative people can bring on severe symptoms quickly. I don't know what to do. I am supposed to just "suck it up" when i am passing out or almost passing out, with severe chest pains, tachycardia, and severe nerve pain and crying. Fun, isn't it LOL.... I am not doing well this year and dreading the day. This is the first time in my life that i dread Christmas... Good luck to the rest of you, and Merry Christmas if you feel like it
  6. Yes, I get that as well. It is usually with this feeling like when your foot falls asleep, but it goes all of the way up the one side of my body. It is such a strong tingling if it happens when I am standing, I almost fall over.
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