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About mancmm19

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    Advanced Member
  • Birthday 06/11/1986

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    Arlington, Virginia

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About Me

***UPDATE- My journey with dysautonomia began in 2006 although I think I've had mild symptoms since puberty. After a particularly rough and debilitating period from 2006-2010, I was able to modify my lifestyle and with the help of exercise and meds, resume a "normal" life (what I called my new normal.) However, this past October I came down with a bad virus/sinus infection on top of being run down from a stressful and demanding job. I had my first POTS attack since 2009 which landed me in the hospital and its all been downhill since. The virus cleared up but I was left very symptomatic with an indescribable daily malaise and fatigue. I am extremely symptomatic everyday and in addition to POTS, also have NCS and a few other triggers so I like to say I just have Dysautonomia in general.***

I was diagnosed with POTS 2 weeks ago, after being sick for 2 and a half years with no answer except possible Lyme Disease. I am unsure what symptoms are related to what, if the Lyme diagnosis was really what I had or whether it was POTS all along. Even though I finally have a definitive diagnosis of POTS, I still feel unsure if I can put my worries to rest or whether I should still be on the search for something else the doctors are missing. If anyone knows of a good POTS doctor around NY/NJ PLEASE let me know. Also, take a look at my first post, "Strange symptoms...pots? Please help style_emoticons/#EMO_DIR#/sad.gif" It is a summed up version (believe it or not) of my 2 year journey and all of my symptoms. I am very welcoming of questions, comments, and the like so please do not hesitate to contact me style_emoticons/#EMO_DIR#/smile.gif

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