mome22

I am also taking Atenolol 25 mg(soon to be 50 mg) and Lexapro together. So far so good on them for me. The Dx I have right now is tachycardia(I have gone into SVT). Im usually on here for my daughter who has NCS, but thought I might be able to help:)

Deanna, My now 13 yo daughter has NCS. She has passed out in the past but since getting the Dx and knowing when its coming we can kind of "head it off". She missed alot of school this year due to the symptoms. I didnt apply for SSI for her, my son has it for asthma, IgG deficiency,etc. He has many Dx. I dont think both kids can get it, although it would be great insurance wise. I had to apply for SSI for my son last year, it only took 4 months for the approval which is pretty good from what I heard.

Tearose, Thanks for replying. Wouldnt it be funny if everyone did have the symptoms at the same time. At least we would be able to know when things are happening.LOL. Do you take any meds for your condition? My daughter is on Atenolol 25 mg. But being a young teen she always forgets it. i feel like im giving meds out all day between my 2 kids. Oh well thats why Im a stay at home mom I guess.

Merrill, Thanks for replying. It is glad to know that I can get help here. You all have helped me alot and I greatly appreciate it. I am sure I wil think of more questions soon, I hope I get replies then. LOL. I think the worst thing is when you post and lots of people read but noone replies. I wouldnt even mind a "sorry i cant help you with that one". Just to know that people are going thru this and we are not alone helps. Thanks Melissa

Thanks Nina! I am going to check out all the links.

Merrill, Thanks for replying! Can you tell me the difference between the two? I found this site by actually looking something up for me. I have a very fast heart rate and am on Atenolol also. In the past my symptoms were the fast heart rate, feeling faint, low BP and others. The symptoms I have been having is slightly different than before. I get headaches, cant bend down then stand up too quickly because I get dizzy I am trying to figure it out. I just got dx with a murmur and had an echo done, getting the results today. I am 31 and have been going thru all this for years, since before 18 and have gotten sooo many dx. Any ideas?

Hi all, I am new to the boards and was wondering if neurocardiogenic syncope is the same as POTS? I have a 13 yo daughter that was Dx with NCS at 12. I read one of the posts about a senior in high school having trouble with the teachers understanding the condition. I went straight to school clinic with a note from the doctor explaining her condition because the teachers werent allowing my daughter to go to the clinic or bathroom. Being 12 she didnt really want people to know she was having a problem and asking to go to the bathroom instead of the clinic when she was getting the dizzy, faint, tunnelvision feeling. Well when she came home one day and looked horrible I called the school and spoke to the nurse, she gave her a permenant pass to the clinic and restroom. She no longer gets told no when she asks to leave the room. The nurse talked to each of her 8 teachers individually and explained her condition. After they found out that she can "pass out" and drop her BP and heartrate when she faints they were a little more happy to send her to the clinic. She is on Atenolol. Let me know if I have the right boards before I keep rambling. LOL. Thanks