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Royler

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Everything posted by Royler

  1. Thanks to everyone for their feedback. I suspected Dysautonomia over CFS simply because it seems like my autonomic system has gone absolutely haywire following my bout with mono in 1997. I theorize the virus somehow damaged the ANS to the point where it overreacts to everything, prompting neurological arousals during sleep and odd symptoms during the daytime. I'm 29 and live about 45 minutes from Syracuse, NY. I hesitate to have a tilt-table test because the sensation of passing out is freaky enough without someone actually forcing me into that state. I don't normally have problems with my heart, though it can pound a bit when I lie down to go to sleep. As for tests, etc, I've been to several allergists (who found nothing overly unusual, save for scratch-test reactions to airborne allergens); I've also had several sleep studies, since I believe my non-restorative rest is the worst offender of the lot. As far as SSDI goes, I'm not even sure I know which would be the best course of action to take - that I have sleep-disordered breathing that doesn't respond to treatment, that I have CFS, or that I have Dysautonomia. I will email Doctor Stewart to see if he can recommend anyone. Thanks again.
  2. Hi, all. New member here with some questions. I've been feeling unwell for the past near-decade and have been struggling for answers. Recently, I stumbled across the concept of Dysautonomia, and it sounds very much like a possible cause of my problems. In brief: - Was in fine health until a bout of mono in 1997 - after that, I began experiencing the following symptoms: 1. Non-restorative sleep, prompting debilitating daytime fatigue. (I can get to and stay asleep fine, but the quality of sleep is horrible - studies show I rarely enter stage 3/4.) 2. *Extreme* sensitivity to previously tolerated allergens: dog dander, pollens, etc. An open window can leave me tossing and turning all night. I DO NOT cough or get stuffy, but my body feels "wired," almost like a caffeine fit. I can also respond in the same way to certain electronic devices(!), new paint, etc. The best way I can describe it is, it's like my body is making a fist. 3. Frequent urination: not the sensation of having to go, but actually having to go a *lot,* frequently, even when I haven't had much to drink. Typically a response to allergens. 4. Recurring skin problems (eczema, psoriasis). 5. Low blood pressure - I tend to have panic attacks when I'm in open areas, feeling like I'm going to black out. I have had several sleep studies, and all show signs of sleep disturbance/apnea, but CPAP does little to alleviate it. The problem grew so severe in 2002 that I left work and now try to earn an income from my home office. (Not easy.) Does this sound like Dysautonomia? If it is, can anyone recommend a good doctor in Upstate NY to consult with? I have a SSDI hearing coming up shortly and would like a proverbial leg to stand on. Any help/advice would be appreciated. Thank you.
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