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VJWeaver

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  1. I want to Thank everyone for the well wishes. I usually get over surgeries real easy but this one has kicked me right in the behind. I still think someone come in my house and beat me almost to death. I don't think there is a part of my body that doesn't hurt. This reminds me to not complain about the small stuff and the small pain...LOL... Thank you all again and hope all is doing okay. Love and Hugs, Vickie
  2. You mean I can only have one day at the spa....!!!!!!!!!!!!!!! That is not fair. It has always been really hard for me to take a shower and get ready and do it fast...Just doesn't work. Well now I am slower tahn that...Didn't think it was possible....LOL....Well atleast I know it will get better.... Thank You to all that has responded to my post. It has really helped keeping my humor going.... Michelle you know what I would be like without that....LOL.... Love to you all and hope all is doing as good as expected. Vickie
  3. Thank You everyone. I told the doctors that I just wanted attention not scars....LOL.... But you know how they are they NEVER listen to us... Thanks again to all, Love and hugs, Vickie
  4. Well I wanted to let the people that know me that I just had Quad By-pass.. I went into the ER because my BP went out of control (which mine does) and chest discomfort. They did EKG and saw inverted TWaves.... Then later that day they did a Heart cath on me and then Open Heart. I asked if they could slow down but it was already done..LOL....So now I have to check and do research on NCS, POTS, EDS and Heart Bypass. If anyone has any information that they might think I would want to read please send to me at VJWeaver32@earthlink.net. I am not really up to doing to much research right now but I do want to look into it and see if I may find something out that could help someone else from not going through this. I hope all is doing okay and feeling well as can be expected. Love and Hugs to all, Vickie in Ohio
  5. Hi Everyone, I just wanted to update you on the DYNA Conference. I may not be able to attend as it looks like I am getting a Pacemaker put in so I wanted to make sure you all knew where the lecture was being held in case I am out of communications with you. If you are planning to attend you should have notified me by now. Plan to arrive at the Ward Pavilion at Wildwood Preserve: 5100 W. Central Avenue, Toledo, Ohio before 4:30 PM on July 13. Adults should sit towards the back and leave the front tables for the DYNA families and kids. All other events of the DYNA Summer Chill Conference are private and for the registered DYNA kids only. Children must be registered and on the attendance sheet with DYNA by now. Space is very limited and they will not be able to accommodate walk in's. Have fun and enjoy to the people that are attending. You wil find it real interesting. I did last year. Vickie
  6. Frances, I myself think it would be worth it. I see him but I live in Ohio so it is a lot closer. My first appt. with him was 4 1/2 hous long and he does explain in detail of what we have. If you are already know alot about these disoders then it is if you want to. I have heard people on different support groups say that it was worth and some say it wasn't because they knew the stuff he was talking about (such as serotonin levels, he draws a picture of the head and points out where we malfunction at, etc. I always say that it is nice if you see him atleast once and get all the information that he has to give. Also if you do decide to keep your appt. email me at VJWeaver32@earthlink.net if you want to. There is a Hilton right there on the campus of MCO. When you call them up directly and tell them that you are going to see Grubb they will give you a good disount on the room. This was it would save you on a rental car. It is a walk to his office but the do have an underground tunnel that will take you there without going outside. I did want to let you know if you don't know for sure if you want to keep it you should wait until it gets a little bit closer to the date. Once you cancel foget it trying to get it back...LOL.... Hopes this helps you. Good Luck to you, Vickie
  7. I am moving this up so if anyone hasn't been online for awhile they will see it. Vickie
  8. I am moving this up so if anyone hasn't been online for awhile they will see it. Vickie
  9. I have mine on my profile but mine is vettprsn56. Vickie
  10. Nina, That is such GREAT news. My thoughts are with them and hope Kelly comes home soon so everyone can spoil her even more... Vickie
  11. I am moving this up so if anyone hasn't been online for awhile they will see it. Vickie
  12. Here is the one that has all the information on it. Hope all is doing well. Vickie
  13. I have heard form some of you that are planning on attending. This will be a great chance for us to get together. Keep me posted. Vickie
  14. Hello there. I do have all the information for it on the post on the 13th titled Conference on Dys. in Ohio. It is really for the children with our disorders but they are having a lecture with Dr. Grubb and two other Physicians speaking at the conference. There are some adults that are coming to hear the doctors speak. It is going to be held in Maumee Ohio which is close to Toledo Ohio. Email me if you have any question on it. vjweaver32@earthlink.net Take care, Vickie
  15. I am so sorry you had to go through that. I have had those symptom a lot. I don't go to the hospital any more unless my B/P goes over 210/120 with the symptoms. I do have some numbness in my neck and arm but not like you did. Or should I say I haven't yet....LOL... I understand how you felt. I went to the ER all the time and they finally looked at me like we can't do anything for you. They see everything is out of control but like you, all test come back okay. It is VERY SCARY to experience this because you feel like you could die anytime and then you feel like a fool when your system goes back to mormal. I agree with Nina. You do need to go when you don't know for sure. I have had so many episodes that I know when it feels like before or when it is a little different. When it is different I go to the ER. Hope you don't have anymore like that and all is okay with you. Vickie
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