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Everything posted by mkoven

  1. I teach at the university of illinois, and find that I have to change positions regularly. Because of joint pain, I can't teach standing, as I used to. I always make sure there's a good chair in the front of the room, and teach from a seated position. I also make sure that no individual class meeting is longer that 90 minutes-- so for example my colleagues teach grad seminars once a week for three hours. i split my seminar into two meetings. With grad students (older, more mature, more intimate group), I bring an ergonomic lawnchair to class. If I need to recline, I do. It was weird at first,
  2. I did end up going to the er-- and was admitted. EKG and 3 repeat cardiac enzymes normal. They just released me and want me to come back tomorrow morning for a dobutamine stress test. the doctors there had a pretty restricted definition of how ncs should manifest-- and didn't think my description of symptoms fit. Don't know what to think. But at least we can rule some things out with the stress test.
  3. How do you know not to worry about it/get it checked out?
  4. Hi, I've been diagnosed with neurocardiogenic syncope. I've had holter monitors and an echocardiogram. the only thing that came back off was tachycardia, but a normal rhythm. I've been trying to exercise. I'm able to use the recumbnet bike for 24 minutes and do pilates with little problem. but when I walk for more than 2-3 minutes I get incredibly short of breath, tired, light headed, sweaty, and a little funniness in my left arm. I'm concerned that there might be something else than ncs going on. Does this sound like ncs? The electrophysiologist I saw said that ncs shouldn't make me short of
  5. Thanks for all your replies. I'm just desperately looking for med-free ways to feel better. I worked a lot on the computer today, and did not feel good when I got up. Head pressure, short of breath. It's freaky. This was with the 30-40 stockings--without which I'm sure I would have felt worse. It's just hard to know when my symptoms are worthy of an er trip or even a doctor's call. Still learning what's normal ncs. Because typically ,short of breath, faint, sweaty, chest tightness is the combo that means "call 911." I've had ekgs, and echocardiogram, and 2 30-day event monitors. The only abno
  6. Thanks for the welcome! this whole thing has been quite unpleasant, but it's good to read others' accounts of what's "normal" for ncs/pots. I feel like such a freak around all my friends and family--I've always got something going on. and people are quick to tell me it's anxiety or stress. And it's not like there isn't plenty of that--this past summer has been VERY stressful professionally. I'm sure the stress hasn't helped. But this thing also seems to have a life of its own. I don't know if this could also be ncs/pots. since May I get these episodes of weakness. At first they were one-sided
  7. Hi, This is my first post here, though I've been lurking for a bit. An electrophysiologist recently diagnosed me with neurocardiogenic syncope. I also have hypermobile eds. Any way, it's all gotten much worse since this summer. Before I would feel like I was going to faint a couple times a month. (I think my first faint-spell was four years ago, and triggered by super-intense exercise. ) Now it's all day long. I really want to get on top of this. I work full-time and want to keep being able to. I've come off prednisone in the last month for some serious allergic reactions and have noticed that
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