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janiedelite

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  1. I am so glad someone posted about this! I have a constant burning mouth that appeared the same time as the burning in my skin. I also have a strange metallic taste at times. The burning goes all the way down my throat and I've described it to my doc as feeling like I just drank a scalding cup of coffee all the time. They are all perplexed, and don't know what to do with me... of course.

    There's been a lot of posts lately about Mast cell disorders, and I've been doing some experiments seeing how I feel after taking antihistamines. Benadryl is the most effective medicine I've tried that reduces my skin/mouth burning, especially if I take it right after getting stressed or experiencing any other "trigger." It doesn't provide a lot of relief for my orthostatic hypertension and other symptoms.

    This is my first post and I want to say "hi" and thanks to all of you who share your experiences and wisdom with dysautonomia!

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