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crazyblue

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Everything posted by crazyblue

  1. I actually prefer night shifts also but I found I couldn't sleep well (of course this was while pregnant so it could be different now) switching back and forth all the time. Guess I won't know until I try it Thanks for the advise. I see my Dr on Wed so we'll see what he says re: meds and specialist. (My Dr is only a family GP)
  2. it's just not the same with warm chocolate. lol I know before I was diagnosed, hot meals made me more tachycardic then usual, that and I had delayed gastric emptying so I'm glad that I don't have that anymore. It was so hard trying to have a family diner then feel like fainting for hours after eating.
  3. I'm currently taking 30mg of Celexa. It's been a wonder drug for me for controlling my symptoms (tachy, shakes, dizziness etc..) It doesn't work for everyone as well as it does for me so it's trial and error.
  4. I'm a cancer nurse with POTS I know so few people with POTS that I've never met one yet to have cancer. I commend you on your fight! I know how hard it can be. Wishing you a speedy recovery and full remission!
  5. There are a few things I need advice with so I'll start listing. lol Shift work or not shift work??? I work 12hr shifts as a nurse and I'm required to do half of them nights/month. Any one else able to maintain this life style? I have not gone back to nights since being diagnosed and I'm supposed to go back (after the end of mat leave dec07) to doing nights. I really don't think I could or SHOULD. Any tips??? SSRI's???? I'm taking Celexa which is working GREAT for me. It's controlling almost all my symptoms so that I could maintain somewhat of a life. Only problem is that I'm trying to go off to try another tx since I'm starting to have some side effects after over a year being on them. My head gets so spacey when I try. I can't function or drive or even think. I'm getting so frustrated with myself and everyone around me. Doctors??? Does anyone know if the ones in Canada will do teleconferencing??? I really can't afford to go out to Quebec. My Dr over here is a complete joke and I've been the one telling him how to treat me all this time. I'm even the one who told him to order me a tilt table test so that I could finally be diagnosed. I need someone that is willing to help out more and that is informed. I even offered him all the info I'd printed up and he just blew it off.
  6. I was begining to wonder this myself! I am a hot chocolate addict and I was thinking that it was the caffeine that was making me worse. S I started diluting them to the point of being slightly chocolate flavoured water and still the same. Guess I should have guess this all along I'm just limiting myself to days when I don't have to work. Too bad since it's really really cold up here in Canada right now!
  7. MomtoGiuliana- Yup just taking Celexa for now. I'll use it till it doesn't work anymore and then I'll try something else. I just want to take as little meds as possible for as long as possible. It's hard though since no one up here treats it and they all suggest invasive treatments right away like a pacemaker and metoprolol (since HR goes down to the 30's when sleeping) I was so worried while pregnant b/c I couldn't really find much info so now, I can give it! lol
  8. You know I was just wondering if my SSRI was causing my weight trouble also. Judging by the responses it's certainly not helping. I lost 25lbs in 2 weeks when I hit rock bottom before being diagnosed (nausea and diarrhea related) If it weren't for the fact that my med keeps me feeling almost normal I'd switch. I'm afraid that I would spiral down again.
  9. For me it depends on how I'm sitting. If I've got my legs up on the chair then I'm usually fine for a while but if my legs are down then I get the same feeling. I hate it b/c it's makes me panic that I might faint then that makes it worse too!
  10. Well it's been a while since I was on the site (could be something to do with having 5 kids. lol) Thought I'd send an update. I was terrified of being pregnant with POTS since they figured my last pregnancy was what triggered it full blown for me. I felt THE BEST EVER during the last 3 months of pregnancy and kept trying to convince the Dr not to make me have the baby b/c I would feel this good ever again. (planned c-section) Well my darling little girl Reece was born on Dec 11th 2006 weighing in at a small 7lbs 6ozs (small compared to my others which were all over 8lbs) I was taking Celexa for my POTS and she sort of crashed a few hours after birth (something about withrawals) Very common and she went to NICU for 48hrs to be observed. She perked right back up after being there for 4 hrs but they wanted to be safe. I didn't do too bad after the section but I always have less the average blood loss so that helps. I spent the first night feeling like I was in a sauna! Had lots of palps but nothing too serious. NO fainting thankfully. Breastfed right away and still are (NOT helping me loose weight though Grrr) She's now 10mths old and doing great and so am I! I still get the dizzies (which drive me nuts and I'm covered in bruises from hitting walls, doors and chairs) I swear that people would think I'm being abused if it wasn't for the fact that he's always out of town! lol I HATE the brain fog which seems to be worse but that's minor compared to what I could be suffering from. Palps still there but tachy seems to have settled. I now have my tubes tied so no more whoops! lol For anyone worried about being or getting pregnant, It's true what they say about pregnancy making you feel better!!!
  11. Just checking in to see how you are doing. I'm finally booked for my section. It will be on december 11th. I'm so nervous as to how my body will react aftewards to the large fluid shift. I'm trying not to worry about but how can you not. any relief is your symptoms yet? Hope you are feeling better.
  12. I was admitted last October with uncontrolled postural tachycardia. NONE of the 7 Dr's that I saw new anything about POTS! I even went out of town to see a specialist who were supposedly the best in the province for hearts and he said he had never seen it before! they used me as a ginea pig by showing everyone around what happened when I stood up then lied down. I didn't mind since I felt that I was educating other Dr's-to-be so they would know later on. They still don't know about it in my home town and my family Dr has made no moves to educated himself. I've been the one ordering all my treatment and telling him what needs to be done. I get so frustrated at times because there are still days when he thinks that this is all in my head and that it's just "anxiety". I've had EMS workers argue with me and tell me that it HAD to be drugs that I was taking that was doing this. I mean hello!!! If it were drugs that made me feel so bad, I'd just stop them! I wish there was more education and information out there for Dr's. Although I lvoe this site and it has been the best one I've found. I've been able to find treatments that work for me so far.
  13. Hey there. I'm sure it will probably get better for you also but be prepared for days when you don't get neough sleep for things to act up really strongly. I work as a nurse shift work and just tried night shift for the first time in over a year (had been off sick for a year) and let me tell you the lack of sleep really made me feel horrible with bad bouts or tachycardia last night. I ended up having to go back home. Drink lots and get plenty of rest, which I know they always tell you. It's hard when you are getting closer to the end and you can't get comfy and then the baby kicks that baggeebers out of you! lol I do know that we are having a girl! This has actually been the best that I've felt in a very very long time. I even feel better then my other pgs! My BP has stabilized from what I can see but I still have days where I get tachy doing very little. My light activity HR is also in the 120's but when I get really bad (like last night) it will go as high as 150's. I feel so horrible and tired afterwards too. I'm currently taking Celexa for my POTS and it has been a life saver! I can function at home and take care of my other children too. My POTS was also post-partum onset so I was really nervous as to how my body would react to all the changes. Have they ever wanted to try you on an SSRI? The side effects are minimal and very low for baby too. The only thing I'm worried about now is how I'll feel afterwards. I'm so worried that the fluid fluctuation is going to put me back to were I began. I saw the OB friday and now b/c the baby is so big already (weighing approx 4lbs at 29 weeks when she's supposed to be just under 3) they are moving up my section date to most likely Dec 6th. Unless he's on call that weekend. I can't wait to hear more about your pg as it progresses. How many weeks are now? Could you ask your Dr for saline IV boluses? I know they made a world of difference for me. I still had episodes but they were so much more mild then before. Are you getting sick a lot? I tried Diclectin but WOW that threw my BP so low that it was very dangerous so I only took one dose of that. I lived on Gravol. LOL I hope that things start looking up for you soon too. There is an end in sight even if it doesn't seem like it now. I swear that I thought it would never end. lol
  14. Hey there. I'm new to the forums but not new to POTS. I'm currently 28 wks pregnant and just wanted to offer my support. I have been suffering from POTS for years now (undiagnosed) until April of this year. 3 weeks later I found out that I was pregnant with our surprise 4th child. They figure the pregnancy/birth of my last child triggered the downward fall but since I was on an SSRI for post partum that I masked it until I went off last summer. It has been a rough ride. The first 12 weeks of pregnancy I was practically bedridden and I needed IV fluids to help maintain my hydration so that my symptoms wouldn't get so bad despite being on an SSRI. I finally stopped getting sick around 18 weeks but started feeling better after 14 weeks (no IV Fluids by then) I'm now in my third trimester and I feel soooooo much better! I'm back at work and almost back to normal. (If there is such a thing for someone with POTS) I'm having a c-section in early/mid december depending on how big this little one keeps growing. I am also in contact with another woman whose had 2 children while she has POTS and the same happened to her. Very rough begining but did get better eventually. I know this isn't going to help much right now but things will get better. It's hard when you feel so sick at the begining to think that there is an end in sight but it will all be worth it when you see your beautiful baby. I'm here if you need anything or have any questions. I'll keep you posted as well so that you know (hopefully) what to expect.
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