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Ernie

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Everything posted by Ernie

  1. Ernie
    Hi, Even if I lost my job 8 years ago it still miss it. Especially when I meet someone that does the job that I used to do. I am sorry for your loss.
  2. Ernie
    Hi, Emphysema, asthma.
  3. Ernie
    Hi, Thanks Stacey for your help.
  4. Ernie
    Hi, I checked my contract another time and it does not mention anything about giving me the information. It does talk about confidentiality but it is with government and insurance companies. They answered most of the questions you wrote Poohbear. I called the secretary this afternoon and she told me that usually he does not give the documents but since I am asking him he might do so. I have to wait until next week to find out because he is unavailble.
  5. Ernie
    Hi, I don't know too much how to say this but older people and children have to be careful with medication since their body react differently than an adult.
  6. Ernie
    Hi, This is part of POTS symptoms.
  7. Ernie
    Hi, Thank you very much for all your advice. I will call the investigator next week to see if I can work out something. I read my contract and it does not say that I am not allowed my research records. Before I entered the study I asked if I would get my result and they said yes. That's the reason I accepted to stop my meds again and get really sick.
  8. Ernie
    Hi everyone, Do any of you know if there is a law in the States that says that the researchers have to give the research patient their tests result? I went to a research facility and I can't get the test result as they are saying that it is "Research". I would like to have the result in case there is new information about my case. Thanks
  9. Ernie
    Hi everyone, For those who have seen Dr Grubb during the last year: Is there a new drug that he is prescribing? Thanks
  10. Ernie
    Hi, Welcome aboard. I think it is worth your while to see a specialist like Dr Morillo. The basic test is TTT.
  11. Ernie
    Hi, Mine is caused by high adrenaline.
  12. Ernie
    Hi Suzy, I am so happy that you finally have the answer has to why to can't tolerate meds. What a victory!
  13. Ernie
    Hi, It started at my conception.
  14. Ernie
    Hi, It took 30 years to get diagnosed. They thought it was all in my head. Dr Grubb was the first to diagnose me. He is from another country.
  15. Ernie
    Hi, I have high adrenaline when supine and extremelly high when standing. I effectively have to be put upside down to stop the adrenaline attacks. This is why I got my hospital bed. Your medical report makes sense.
  16. Ernie
    Hi, I think that the increase is only for the time you take Florinef. When you stop it it will decrease.
  17. Ernie
    Hi, I have intense tremors which is mostly caused by adrenaline. It is controlled by BB.
  18. Ernie

    Flu

    Ernie replied to Maxine's topic in Dysautonomia Discussion

    Hi, I am sorry Maxine for your loss. I know how hard he struggled to fight the disease. I take essential oils of eucalyptus and melaleuca.
  19. Ernie
    Hi, When I wake up and before I get out of bed then every 4 hours after.
  20. Ernie
    Hi, I was in the hosptal for 3 months and they never found out what I had. Then I went to see my internal medicine doctor who diagnosed endometriosis. I was put on depo provera and the pain disappeared in weeks. How did they eliminate endometriosis?
  21. Ernie
    Hi, He needs to want to change and he has to go to anger management class or have a therapy to work on his violent childhood.
  22. Ernie
    Hi, He might be contributing to making you sicker than you would be without him.
  23. Ernie
    Hi, Does Hyperkinetic Circulation= High Blood Pressure or is it more of an overall, everything is working faster than it should while supine? Your blood is circulating too fast when you are supine. Anyone know if the blood distribution ratio number dropping by 44.5% indicates blood pooling???? Does that mean that 45% of my blood pools??? Your blood left the main blood vessels when you were upright.
  24. Ernie
    Hi, My baseline HR when I did my TTTs was between 110 and 120 and I was still diagnosed with POTS and NCS. Maybe ask your doctor for a BB.
  25. Ernie
    Hi, What is your baseline HR?
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