Medford1

Hi Sadie Lady - I am the mother of a child who was diagnosed 2 yrs. ago with POTS. I know many other families who are caring for children/young adults with dysautonomia. We all have had our share of difficulties with finding the right doctor - whether it be for TTT, diagnosis or treatment. I will share with you this important point - until you get to a qualified physician, you and your son will likely continue to have frustrating experiences. Our local doctors had no clue and still don't. Pediatric dysautonomia (and its sub-categories) is a field which has seen recognition, change and growth in only the last 10 or so years. Most doctors are ill-informed. Furthermore, care and treatment for children/young adults is diferent than adults. There are excellent physicians who can help your son. Once you have met with a qualified physician, you will know it immediately - they understand and things start to fall into place. As mentioned in a prior post, I urge you to view the Dynakids.org site - a pediatric specialty site - and to contact their office. You can talk to people who know how to help. The appropriate care for your son as soon as possible is critical. I remember being in your shoes - not knowing how to find the right help. It can and will get better once you are on the right track. Best wishes.