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Everything posted by relentless

  1. thanks OLL! I will definitely start taking B vitamins. Years ago I got on a vitamin kick and my body really got out of whack. I've since learned to only take multivitamins to keep them balanced. The only other part of my body that swells is my feet/ankles.
  2. Not really. I don't think much has changed since my last echo 10 yrs ago. A tilt test would glean far more info I think, as I think the arrythmias are triggered autonomically. I did contact a cardio research study affliliated with my cardio and they said my EKGs are all over the place. Several MI's, etc on the readings. I think my heart just goes nutz and can't find a happy rythm. PITA it is. Thanks for all your feedback. I'll find out more about the tilt test this week and take it from there.
  3. Bummer. Then it's back to neuropathy of unknown origin. Will a tilt table test be conclusive to rule out the heart or would I have to take a myriad of additional tests?
  4. Interesting. Don't nerves control BP and heartrate? I've also been told I have a peripheral/polyneuropathy, but they could never find the cause. And I had a severe case of RSD with nerve damage after a wrist fracture. The severe pain of RSD seemed to clear up except for flare ups, although the bone degeneration and atrophy caused by RSD remains. Seems like the nerves that control blood vessels would be the cause. I haven't a clue what part of the nervous system controls those. I would encourage those with this problem would bring it up to their doctor if it doesn't cause too much stress
  5. thx for the replies. Glad I am not alone. I wouldn't be afraid to bring it up with your doctor. The biggest problem with mentioning it is 'describing' it. It sounds looney toons, but it is very real. A good word to describe it would help. Back in the mid-90's when I was seeing a cardio post TIA's, I was able to narrow it down more specifically, but this time it is the vibration only, as far as I can tell. I don't try to get out of bed when it happens. It jerks me awake. 10 yrs ago, It happened as soon as I laid down. One night I got fed up with it and decided to not worry about it. The
  6. I am in the process of trying to find out what is going on. I was previously told I had heart arrythmias, orthostatic hypotension, TIA's, blood pooling and swelling in legs. I have had gait disturbances, white outs, nausea, presyncope. What scares me the most is when I am awakened to my whole body vibrating. I tried to do a search on the forum, but I don't know what word to use. The best way I can describe it is, I am awakened suddenly and my whole body feels like it is vibrating very, very fast. Also I am waking up in the morning and both my hands are almost numb. They feel swollen and
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