Tanzanite

Of course I can't diagnose but it sounds like Vitiligo (not sure of spelling) it's an autoimmune thing and some people are more prone to Addison's if they have that. My cousin has it.

I have improved quite a bit with vitamins and minerals. I take Calcium and Vit D, Magnesium, B12 and all the other B's. Vit C, Zinc, Omega 3, Garlic, high quality probiotics, potassium (only small though, take most of it from food etc).

I get it too, mostly only when I'm trying to get to sleep and the time is getting near to 12 midnight. I mostly get it in arms and some in my upper body. Occasionally I've had it in the day if I'm having a bad patch.

I wish I was cold all the time!!! I'm always boiling hot!!! I hate being hot, much rather be cold.

Found them! Cheapest I could find. They either called them bed glasses or prism glasses. They dont look attractive but if it helps, who cares! 3rd product down. http://www.medesign.co.uk/products/bed_sleep/bed_sleep.html Send me a PM if you need help with getting them to you. Apparently they deliver worldwide though.

If you have EDS DON'T do it!!!!!!! My optician told me if I had it done, my eyeballs would disintergrate because of the lack of collagen.

I'm off to find those glasses! (Not sure what they're called) You may only be able to get them in the UK but I can always help you out there if you want by posting them over to you. Cordless keyboards and mice are not that expensive anymore. You should be able to find something. Try ebay! As for the bed table someone posted (sorry, can't remember who you are) I have something very similar I use my laptop on. Make sure if you get one that it tilts so you can lay down more.

Connect your pc to your tv, use a cordless keyboard and mouse. If you are laying flat maybe some of those glasses that lets you see things when you're lying flat so you can see the screen. Any good?

Does anyone get dizzy then get a bad headache or vice versa? I've had this for years. I also get a sudden dizziness, like a bad spinning and I feel like I've been pushed to the left. This all happens within seconds, then I can get a bad headache or it'll happen the other way round.

What exactly is it? I've been told I have Autonomic Dysfunction, POTS and they wrote Autonomic Neuropathy instead on my notes. What's the difference and the difference in prognosis?

I can't breathe, so can't lay on my back.

You wouldn't believe what I do in bed or I like to call it from bed. Read avidly, watch tv and films but prefer to read. Do craft things, internet, photo editing, give myself pampering sessions (facials etc), help run a business, home ed my child. The list is endless. I do need rests though of course but I don't lay down most of the time as it makes me much worse. I sit up propped up. I'll only lay down for about half an hour maybe once or twice a day. I also try and potter around when I can, I always seem to be up and down for things, getting this and that, going to the loo.

One word - potassium

I have candida which I'm trying to get rid of myself through high quality probiotics, garlic pills and low sugar diet as I can't take anti-fungals. With florinef it's a contraindication of taking it if you have fungal infections. It's the only med I'm on for POTS and there's no way I want to come off it and risk going back to how I was last year.

There's betahistine (brand name Serc in the UK) I used to be on it. Worked well for me, and don;t seem to need it anymore.

When you have a cold or dental work etc, does your Dr tell you to take steroids such as prednisone as well? Also do any of you on Florinef also have systemic candida?

You do make me laugh lulu! Who knows, maybe it will help, need all the help I can get! Perhaps you should be Diamond as you get people sparking off you and make people smile.

Aww, you poor thing. Have you tried some hypnotherapy or relaxation CD's? They helped me sleep when I was bad last year and only got 2hrs sleep a night and felt exactly the same as you do. Hope you get some sleep soon. (Hugs)

I just wrote a long paragragh and it disappeared ARGH! Bascially I was so ill last year I thought I'd die, I've gradually got better thanks to my own doing but while some symptoms are less or completely gone, I've developed others. I'm still stuck in bed and not able to do much but it doesn't stop me trying!

It's to do with the stone (hence the avatar) as it's so pretty and rare, like me! LOL (Rare I mean, not saying I'm pretty or anything, not blowing my own trumpet!) I prefer the purply ones, as lilac and purple are my favourite colours.

I was worried about Morgan too. Especially as before she said her adrenal tests showed her cortisol levels were low. Very very worried about this.

My new name is Tanzanite! Pseudoephedrine, that's the one! That doesn't sound good what happened to you (hugs). I haven't taken it for a few years, too worried the tachy will go into overdrive!

I tried to change my email but never got the validation email so I had to set up a new account and username. So I'll now be known as Tanzanite. Sorry for the confusion!