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  • The Member Stories section of our site is a place where members can submit the stories of their experiences as a person living with dysautonomia.  We also link to member stories that have appeared in our newsletter.  Please note that Member Stories are not edited by DINET and the views and beliefs expressed in the articles are strictly the views of the member.   Please note that the stories submitted are reviewed for content and should follow the guidelines of the site.  We do our best to publish each story submitted,  but publication is at DINET's discretion. If you would like to submit your story, please write to webmaster@dinet.org - include "member story" in the subject line. 

Featured Member: Sierra Brown


DINET member name:  Sierraboo214SierraBrown_Bio.thumb.jpg.e2a5d05add48515abf5465922cfb3751.jpg
Sierra's hometown:  Tracy,  CA
Diagnosis: POTS,  Mast Cell Activation Syndrome, Ehlers Danlos Syndrome, PTSD, Gastroparesis, Immunodeficiency 
Sierra's pillows for patients project:  https://www.gofundme.com/portpatientpillows

In Sierra's words....

I suffer from POTS (stage 3 dysautonomia), mast cell activation syndrome, Ehlers Danlos Syndrome, PTSD, and immunodeficiency.  I currently model and do animal photography.   I love to sing and act, but my newest project is making free port pillows for port-a-cath patients. I send them all over the world and get donations to keep the project going.

I have a service dog named  Chigo.  I do animal photography as well as studying animal psychology in the hopes of one day opening an animal rescue.

I love to helpSierraBrown_pillows.jpg people. I started making port pillows to give to patients for free because I understand the need.  I have been using social media to distribute them to people and I have been collecting donations to cover the costs.  It helps me cope with my own illnesses because it makes me feel like I really have a purpose.



Edited by edriscoll

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