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Information Guides


edriscoll

Below are articles full of information designed to help people living with dysautonomia.  There are guides  written to help your family and friends understand your illness and help you all learn to live with it together. The POTS Guide for kids was created to be used as a handout for your child's teacher, coach, tutor, school nurse, their best friend's mom, or anyone else that may be responsible for your child when you are not there. Many guides include links to pdfs to make it easier to print, email or share.  The Patient's Guide is to help patients with tips to prepare for a visit to the ER or a new medical provider. The Information Sheets are designed to help you remember the information you should have with you.  The Life with Chronic Illness section includes links to newsletter articles on a variety of subjects about the issues faced for people with chronic illness. 

UNDERSTANDING DYSAUTONOMIA

A guide for family and friends

POTS GUIDE - for the family of children & teens living with POTS

I know a kid who has POTS  

Hydration and POTS

PATIENT'S GUIDE

Preparing for the ER and new medical visits

LIFE WITH CHRONIC ILLNESS

Managing and enjoying life - surviving guilty feelings, service dogs, dehydration,  beat the heat, visiting national parks.

Thriving with chronic illness - traveling, adaptive devices, technology, hyperPOTS patient story, finding balance.

 

Edited by edriscoll

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