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  • SPECIAL EVENT:  If you missed the premiere of Dr. Suleman's presentation, "Get in the Know:  An Overview of POTS Today", you can still watch the video on our  YouTube Channel   Next week's session:  "COVID-19 and Dysautonomia: What is Known and What is not" with Dr. Svetlana Blitshteyn.  Click below to read about the rest of the sessions happening throughout the month.  

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COVID-19 Articles and Resources


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NOTE from DINET:  The following articles and information were shared with us during the early months of the pandemic.  Although the information is still very useful and the links provided a great resource, be aware that some of the information and guidelines may have changed since the articles were written.  Please visit the CDC website for the most recent recommendations concerning masks, vaccines and safety guidelines.

COVID-19 Research: study conducted by Dr. Blitshteyn for Neurologists treating a variety of dysautonomia disorders.  Also, patient research conducted the Rare Disease Network for people living  with rare diseases, whether you have had any exposure to COVID or not.  Visit our Recruitment Studies page for info on both studies.

Statement from Dr. Peter Rowe, Director of Children's Center CFS Clinic, John Hopkins Univ. School of Medicine on COVID-19 and CFS and OI

Dysautonomia and Coronavirus - an article by Dr. Blitshteyn, one of DINET's medical advisers. 

COVID-19 Part 2 - Article by Dr. Blitshteyn, Director and Founder of the Dysautonomia Clinic.  This article tells you what to do now.

From DINET:  We live with chronic illness - tips for COVID-19 isolation  then join the forum to weigh in with your tips - POTS is like cabin fever

Important information you need to know about face masks

From the Global Genes and the Rare Disease Network

Government Updates

Coronavirus (COVID-19) Education & Information

Financial Assistance 

Virtual Networking

Support Services

Mental Health

Talking to Kids

At Home Teaching Resources

Diagnosis, Treatments & Vaccines

Coverage & Benefits

Foundation Resources

Exercise

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