NOTE from DINET: The following articles and information were shared with us during the early months of the pandemic. Although the information is still very useful and the links provided a great resource, be aware that some of the information and guidelines may have changed since the articles were written. Please visit the CDC website for the most recent recommendations concerning masks, vaccines and safety guidelines.
COVID-19 Research: study conducted by Dr. Blitshteyn for Neurologists treating a variety of dysautonomia disorders. Also, patient research conducted the Rare Disease Network for people living with rare diseases, whether you have had any exposure to COVID or not. Visit our Recruitment Studies page for info on both studies.
Statement from Dr. Peter Rowe, Director of Children's Center CFS Clinic, John Hopkins Univ. School of Medicine on COVID-19 and CFS and OI
Dysautonomia and Coronavirus - an article by Dr. Blitshteyn, one of DINET's medical advisers.
COVID-19 Part 2 - Article by Dr. Blitshteyn, Director and Founder of the Dysautonomia Clinic. This article tells you what to do now.
From DINET: We live with chronic illness - tips for COVID-19 isolation then join the forum to weigh in with your tips - POTS is like cabin fever
Important information you need to know about face masks
From the Global Genes and the Rare Disease Network
Coronavirus (COVID-19) Education & Information
Talking to Kids
At Home Teaching Resources
Diagnosis, Treatments & Vaccines
Coverage & Benefits