NOTE from DINET: The following articles and information were shared with us during the early months of the pandemic. Although the information is still very useful and the links provided a great resource, be aware that some of the information and guidelines may have changed since the articles were written. Please visit the CDC website for the most recent recommendations concerning masks, vaccines and safety guidelines.
COVID-19 Research: study conducted by Dr. Blitshteyn for Neurologists treating a variety of dysautonomia disorders. Also, patient research conducted the Rare Disease Network for people living with rare diseases, whether you have had any exposure to COVID or not. Visit our Recruitment Studies page for info on both studies.
Dysautonomia and Coronavirus - an article by Dr. Blitshteyn, one of DINET's medical advisers.
COVID-19 Part 2 - Article by Dr. Blitshteyn, Director and Founder of the Dysautonomia Clinic. This article tells you what to do now.
From DINET: We live with chronic illness - tips for COVID-19 isolation then join the forum to weigh in with your tips - POTS is like cabin fever
Important information you need to know about face masks
From the Global Genes and the Rare Disease Network
Government Updates
- World Health Organization: Rolling Updates on COVID-19
- World Health Organization: COVID-19 Online Courses
- Centers for Disease Control & Prevention: Guidelines for people at High Risk
- Centers for Medicare and Medicaid Services: Current Emergencies
- Centers for Medicare and Medicaid Services: Coronavirus (COVID-19) Partner Toolkit
- Cambridge Rare Disease: Current UK NHS & Government Information & Guidance
- City of Little Rock: Experiencing symptoms related to COVID-19?
- City of Little Rock: ¿Tiene síntomas relacionados con COVID-19? (Spanish)
- Food & Drug Administration:COVID-19 What’s New and Fast Facts
- National Institutes of Health: COVID-19 Updates
- World Health Organization: Coronavirus Information
- Centers for Disease Control & Prevention: Coronavirus Information Center
- U.S. Government: State Health Department Directory
Coronavirus (COVID-19) Education & Information
- Día de la Mujer Latina: Dispelling the Myths and Rumors of the New Coronavirus Disease (Webinar)
- Día de la Mujer Latina: Disipando los Mitos y Rumores del Nuevo Coronavirus (Webinario)
- GRIN2B Foundation: Flip Book Social Story
- SCN2A Australia: Podcast on COVID and Epilepsy
- Coronavirus Support Network: FAQ (English)
- Coronavirus Support Network: FAQ (Spanish)
- Coronavirus Support Network: FAQ (Portuguese)
- National Health Council: COVID-9 Preparedness for people with chronic disease (Webinar)
- Association of Community Cancer Centers: COVID-19 Resource Center
- American Society of Clinical Oncology: Coronavirus Resources
- American Academy of Neurology: COVID-19 Neurology Resource
- American Thoracic Society: Public Health Information Sheet
- American Thoracic Society: COVID-19 FAQ
Financial Assistance
- Laughing at My Nightmare: COVID-19 Resource Relief
- Arkansas Community Foundation: Arkansas COVID Relief Fund
Virtual Networking
- Ehlers-Danios Society: Virtual Chat Rooms
- Twitter QA: #spooniechat
- Our Odyssey: Online Meetups
- The Mighty: Come Hang with the Mighty Events
Support Services
- Robert Wood Johnson Foundation Culture of Health Leaders: Coronavirus Support Network
- Global Healthy Living Foundation: COVID-19 Support Program for Chronic Disease Patients and Their Families
- Cancer Support Community: What Cancer Patients, Survivors, and Caregivers Need to Know About the Coronavirus
Mental Health
- Centers for Disease Control & Prevention: Managing Stress and Anxiety During COVID-19
- Happy: Online Mental Health Support
Talking to Kids
- Kids Health, Nemours: How to Talk to Your Kids About COVID-9
- KinderCare: Talking to Children About Coronavirus
At Home Teaching Resources
- District Administration: Free K-12 Resources
- We Are Teachers: 130+ Amazing Online Learning Resources
Diagnosis, Treatments & Vaccines
- Milken Institute, FasterCures: COVID-19 Treatment and Vaccine
- U.S. Food & Drug Administration: Clinical Trial Guidance
- Mindray: COVID-19 Clinical Diagnostics Webinar Episode 1
- Mindray: COVID-19 Clinical Diagnostics Webinar Episode 2
- Mindray: COVID-19 Clinical Diagnostics Webinar Episode 3
- Mindray: COVID-19 Experts Dialogues
Coverage & Benefits
Foundation Resources
- Centers for Disease Control & Prevention: Communication Resources
- Patient Advocate Foundation: COVID-19 Operational Response Plan
- Nielsen Training & Consulting, LLC: COVID-19 Resources for Nonprofit Leaders
Exercise
- Orangetheory: Orangetheory At Home
- Gold’s Gym: Stronger Anywhere
- Peloton: Free App
- Planet Fitness: Home Work-Ins
- Crunch: Crunch Live
- 305 Fitness: Group Classes
- Corepower Yoga: Keep Up Your Practice
- American Heart Association: Choose Your Own Workout
Entertainment
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