jesse1919 Posted March 14, 2008 Report Share Posted March 14, 2008 Hi,I'm going to get my blood volume tested tomorrow. I should have done it a long time ago but well easier said than done - you know. My cardiologist said he's never ordered one before - amazing. And I think he's a decent doctor - at least he's heard of POTS! So I had to do the work myself - research the test procedure, sift through the Daxor press releases to find a place with a Daxor BVA-100, call, get the run-around and ended up having to drive all the way to Loma Linda even though I'm literally surrounded by doctors here in the south bay. I can't believe UCLA doesn't have a BVA-100. USC supposedly has one but I got nowhere when I called- maybe because they don't do it as an outpatient test, maybe because whoever I talked to is... you can finish the sentence. Kaiser West LA is also supposed to have one but I don't have Kaiser insurance. Anyway, wish me luck. The test will probably go okay but I'll need the luck for driving across LA on the 91 on Friday! Jesse Quote Link to comment Share on other sites More sharing options...
flop Posted March 14, 2008 Report Share Posted March 14, 2008 Good luck - let us know how you get on.Flop Quote Link to comment Share on other sites More sharing options...
Ernie Posted March 14, 2008 Report Share Posted March 14, 2008 Hi,Good luck,I had mine redone 4 weeks ago to compare with Procrit and without Procrit. Quote Link to comment Share on other sites More sharing options...
ellen Posted March 16, 2008 Report Share Posted March 16, 2008 Jesse, how did the test go on Friday? Quote Link to comment Share on other sites More sharing options...
jesse1919 Posted March 22, 2008 Author Report Share Posted March 22, 2008 Hi all,Thanks for wishing me luck. I survived the test and the drive. I've been sort of waiting for the results before I replied. Of course I had to call a couple times and get the "the doctor is really busy but I left a note on his desk" answer. Anyway, the results were normal. I'm not too surprised because salt/ fluids only help slightly but Midodrine and stockings are more effective. I suppose I should be glad I don't need Procrit injections but I'm sure you can all relate to the disappointment of getting a normal result when you feel crummy. The test wasn't too bad. The doctor that did it (Dave something) was surprised I knew so much about the test. I was a little nervous about not lying totally flat - I was in a reclining chair. I felt a little lightheaded when they took one of the vials and there's the usual sting from the IV but overall quite manageable.Well, one step at a time I guess.Jesse Quote Link to comment Share on other sites More sharing options...
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