mrsdavidson8605 Posted March 8, 2008 Report Share Posted March 8, 2008 Just wondering if anyone on here actually lives in Kansas? Sometimes I feel like I live in the WORST state possible to get help for this problem!!! Quote Link to comment Share on other sites More sharing options...
Rachel Posted March 9, 2008 Report Share Posted March 9, 2008 You can also join the DINET Meet Others program to find people with dysautonomia in your state. Here is the link if you are interested: http://www.dinet.org/meet_others.htmRachel Quote Link to comment Share on other sites More sharing options...
lotusflowersusan Posted March 11, 2008 Report Share Posted March 11, 2008 I don't live in Kansas, but know what you mean. I am a neighbor to the north in Nebraska and have not yet found others locally (even though I signed up for the meet others program). I have not received a diagnosis yet, but did have the good fortune to be referred by my local doc to the University of Nebraska Medical Center in Omaha, and feel like I may be making progress towards the diagnosis.It is always good to meet a neighbor... feels sort of lonely out on the plains sometimes. Quote Link to comment Share on other sites More sharing options...
mrsdavidson8605 Posted March 12, 2008 Author Report Share Posted March 12, 2008 I know what you mean! I signed up for it a long time ago but haven't heard anything.. OBVIOUSLY no one in KS has POTS or hasn't found the website yet.. either way it's lonesome!! But it's nice to have the forum to chat with others. Have you had a TTT done yet? If not, I know of a good doc in Wichita if you can't find one in NE. Depending on where you are, it may be worth the drive to have the TTT done... Quote Link to comment Share on other sites More sharing options...
the_dancer_grl Posted March 12, 2008 Report Share Posted March 12, 2008 my parents live in MO (Kansas City) so i live there for 2-4 months out of the year dep. on work and school Quote Link to comment Share on other sites More sharing options...
lotusflowersusan Posted March 12, 2008 Report Share Posted March 12, 2008 I haven't had the TTT (yet), but am working to be referred by my Med Center internist to one of the two ANS neurologists there. UNMC does have and autonomic lab (I was next door to it for my EMG last week), so I am hopeful I will be able to get the appropriate testing soon. Just a slow process. Thanks for your reply! Quote Link to comment Share on other sites More sharing options...
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