Autonomic Specialist In Ct?

[delphicdragon]

Hello

I finally got an appointment to see an autonomic specialist in Greenwich, CT, a Dr. Frederick Nahm (mods if we can't say names, please delete this post) Has anyone ever seen him? Does he "get us"?

I have been diagnosed with POTS and when it got worse about two weeks ago, I finally got my PCP to get me a referral to a specialist. I'm currently not working, am not allowed to drive and still quite sick. (Work is letting me telecommute until further notice, as my PCP wrote me a Dr's note.)

Thanks

Sara

[Guest tearose]

I saw him once a few years ago. He seemed very interested in helping me but I never got around to going back to him. I had already an established relationship at Mayo. What I recall, he was very wise, knew all about POTS, and up on the latest literature (suggesting mestinon the month before the Mayo study was released) I was very moved that he offered and took me on a tour around the ANS lab. They had everything that Mayo had excluding the Thermoregulatory Sweat Test Box. Anyway, I had tons of hope back then. I envisioned that it could become a hub on the east coast for ANS dx and treatment. That was about four years ago. I don't what it is like now.

Please go with good expectations and then fill us all in.

I get more and more physically tired of making the pilgrimages to Mayo, so I am personally interested in your impressions.

best regards,

tearose