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mvdula

Ablations Causing Ist/pots??

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I had an ablation for SVT 2 months before my last pregnancy, during which I had a lot of fatigue/palps, etc. All my symptoms got worse after/around weaning baby at 1 yr (a few months ago). I was just reading that there may be a link between ablation for AV node Reentry Tachycardia (not sure what my kind was but apparently this is most common type of SVT), meaning some people seem to develop IST (which is now theorized to be related to POTS/autonomic dysregulation as I understand it). Wondering if this caused my POTS - thought it was pregnancy, but looking back, maybe the ablation is related. Anyone? Doctorguest?

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There are patients whose symptoms got worse after they had ablations for SINUS tachycardia, which does not seem to be the case with you. The length of time between your ablation and increasing symptoms (which, from what I understand, is about 2 years, given the pregnancy and 1 year of lactation) does not suggest that ablation is the cause of your current flare-up, in my opinion. I think if ablation were the culprit, you would have been aware of it much sooner, especially during pregnancy, which in itself causes increased heart rate and palpitations. If you felt well up until now, I would think that the hormonal changes associated with stopping lactation and resuming regular cycles might be more to blame than the ablation, but you should ask your cardiologist, who knows your case, if he agrees with this theory.

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My ablation made me worse instantly. I never worked again. My old EPS says, I was ablated for IST vs Atrial tach. They found an abnormal blob of tissue and that's what they ablated. It, however, was over the top of my right atria, going to the back side, and they couldn't get to it all, and so just ablated to death what they could get to. He said it was not an extra node.

My new EPS says he will just not ablate POTSIES, because our electrical systems will just find another way to get tachy again. I didn't have tachycardia for about 2 weeks and have had it again ever since, but I felt far worse that two weeks than I ever did any other time.

Now I have a pace maker, because of probable damage to my sinus node. Tachy-brady syndrome.

I know ablation really is a big help for certain things, even a cure, but if you have autonomic dysfunction PLEASE see an EPS who understands pots before you agree to ablation. I have never been the same and not in a good way. I am not against ablation at all, and have seen it make amazing differences in people's lives. But I have seen very few potsies here that it has helped. I'm just sayin.....morgan

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Just a little more info-

I did not have POTS symtptoms before the ablation - had never even heard of POTS. The only symptoms I had were SVT and palpitations. I am just now looking back at the timeline to see if I can pinpoint when things really started for me. Seems like they started during this pregnancy, and got worse with hormonal changes after. Thus I have thought up until now that that was the cause. Now I wonder if the SVT ablation is related - since it was only 2 months before I got pregnant. These are the only 2 causes in my life that I can think of - and that fit with the timing of symptoms.

I have heard not to have ablation on sinus node for POTS - although that is not what I had - and it did cure my SVT, I was just reading about some patients developing IST/POTS? after SVT ablations. Since ablations are relatively new, I wonder how much research there is on this.

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I was ablated for IST~and SVT~ had an AVNRT. I was fine for a few years then took a MAJOR plunge...I have been told to have never had the ablation but geesh 9 yrs. ago ..POTS didn't exist in my life..just some TACH. So who knew...

I think there may be some info out there on it. But I believe it was a specialist that told me it may have made things worsen. WHo knows...

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My ablation made me much worse. When I went for a second option to Mayo, after having two ablations, and a pacer placed, they told me I should had never had the ablations as they think I had IST, not SVT. I am not sure what I really had SVT, IST..... but I do wish I never had the first abltion. I done alot of reading, and looking up information, and it seemm like ablitions with POTS can casue more problems then good.

I hope you start feeling better soon!

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I just had an SVT ablation (a TRUE SVT, not sinus tach) and I am doing much better having had the ablation - now I only have sinus tach (POTS) and occasional v-tach (they couldnt induce it to fix it) and not the SVT (a-tach) on top of it all.

I do not believe that ablations cause IST or POTS. ablations however of the sinus node or any remodification of sinus node in someone who has underlying autonomic dysfunction has proven time and time again to be a big no no and tends to leave people worse off post ablation.

I'd hope your electrophysiologist would be knowledgeable to differentiate a sinus node tachyarhythmic mechanism than an atrial or av nodal mechanism (these of which would constitute a "true" SVT and not that of sinus origin) when you went into the EP lab to have your ablation.

I hope you start feeling better and that you get some answers.

cardiactec.

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