Jump to content

Family tragady and symptom control


blackwolf
 Share

Recommended Posts

We have had a terrible thing happen in my immediate family( I can't say what) and my symptoms are almost out of control. Can anyone suggest home treatment as going to the doctor is really out of the question at this time. Here's what's up

1. Lots of tachycardia, I know i should rest more but that is out of the question. I have many things that need to be done over the next three to six weeks. My cardio seems to be away on vacation right now and the best they can do is make an appt. in 5 weeks.

2. Bad bowel trouble, I'm sure the stress is doing it, but I can hardly eat and what I am eating is just going right through me, Pepto and Immodum aren't working.

3. Muscle spasms, they're the worst I've had in nearly 2 1/2 years. Skelaxin 800mg is barely cutting it. Meditation helps some but I can hardly concentrate on what I'm doing.

Any help, Please.

Blackwolf

Link to comment
Share on other sites

blackwolf--I am so so sorry for what you are going through. Of course any kind of physical or emotional trauma is hard on us POTS patients (hard enough on those who are well).

Get as much support as you can at this time. Don't be afraid to ask others for support--emotional and physical. Drink plenty of fluids and electrolytes. Practice slow, even breathing--even if deeper meditation isn't possible. Eat foods that are easy on your system.

Take care. We're thinking of you at this difficult time.

Katherine

Link to comment
Share on other sites

For the bowel trouble, try the BRAT diet -- bananas, rice, applesauce, toast. It is easy on the digestive system. You can also try yogurt (unless you are lactose intolerant), avoiding fatty foods, and watermelon (good for hydration).

As for the spasms, stay hydrated as much as possible and try to be aware of the tension in your muscles. When you notice you are tensing, sit or lie down and try to relax a bit, even for a few minutes.

Tachycardia, for me, responds best to exercise (makes it worse initially but better over time), meditation (10 minutes a day of trying to think about nothing) and not standing for long periods of time.

I am sending you positive energy to deal with your family tragedy. Good luck.

Amy

Link to comment
Share on other sites

Thinking of you and be strong I promise you are going to make it through this time of your life. Firstly you are important remember that. Eat and eat right, we all know we have to eat. Even if you grab and run. But eat, food is very important. As with regards to stress try not to bully yourself too much. It is wonderful to remember horrible things as a healing process within but don’t hammer yourself to death. Talks to people about the pain you are going thorough. I still talk about my brother and miss him everyday. I lost him over a year ago, very ugly he shot himself to death and I watch him dye. Take medication that will help but be careful you don’t overdo the medication and become useless to yourself and others. Take it easy on yourself, breath handle the situations as they come. Remember do not forgot about your bodies important needs. As for your body doing what it wants to you can only do so much. I don’t handle stress well and almost always end up shaking and sick. Be strong, thinking of you and once again LOOK AFTER YOURSELF! :P

I beleive if you breath, eat and take your medicaiton you will improve!

Link to comment
Share on other sites

This is the kind of situation that makes magnesium supplementation very important. When we are stressed, magnesium gets depleted. It is considered that the vast majority of us with dysautonomia are already magnesium deficient, even if blood tests say otherwise. (Blood tests only measure the mag in the bloodstream, not whether or not it is being utilized properly.) Getting the proper form & amount of mag for your body may take a little experimentation, but it can be very well worth it!

You can call 800-425-3115 to order the Standard Process brand of Magnesium Lactate - $21, free shipping. I take 1 capsule 3 times a day for maintenance, but when I first started with it I believe I took 2 capsules at breakfast and again at lunch, plus one at night. (Trouble taking pills? Just open the capsule into a little water and drink it down!) You'll know if it's too much if you start getting loose stools or diarrhea - if so, just cut back. This is a professional-grade, whole food supplement, and is the one I get the very best results from. (Man, I oughtta get a kickback from them - I recommend them so often! :-) )

And by all means, don't think you have to do everything on your own! You don't have to prove to anyone how strong you are, especially if you suffer for it in the long run!

I'll be sending positive thoughts your way!

Link to comment
Share on other sites

I am sorry for whatever difficulties are going on in your life right now. Remember no matter what to put yourself first. Like all the other posts say, eat, take your meds, keep yourself hydrated and relax.

I will keep you in my prayers, hoping that helps

Sue

Link to comment
Share on other sites

Thank you all,

To opus88, got it been on it awhile. Thanks.

I guess I owe all of you an explantion so here it is, I just found out my brother is a pedophile and was sexually assaulting my daughter(7 years old)and he will be spending the rest of his life in jail. The min. sentence is 75 years just on the sexual assault. I kind of feel like something has died inside me. I guess the only good thing is it was only touching.

Thank you for all your prayers, They are very important to me!!! :):wub:

Blackwolf

P.S. Things are a little better today.

Link to comment
Share on other sites

Blackwolf, I'll hold you and your family in my thoughts. My sister went through a similar ordeal with her son and her best friend's husband. My nephew was about seven at the time and is now fourteen. He doesn't even remember it anymore. They got him counseling for a while after it happened, and the counselor said that since he was rather young, he probably would not remember it.

I also want to share with you what works for me when I get muscle spasms. It really really really helps me if I can go for a walk. Lying down makes them worse, much worse. And if I can't walk, then putting my legs up seems to help some (like on my trash can under my desk at work). I sometimes get them only in my eyelids or only in my hands. At those times, I tried to massage my face very gently or rub my hands together. It sometimes relieves the jerks. Stress definitly makes it worse, though.

I also have very loose bowels, and I use a fiber additive (I think it's called something like Beneful or Fiberful?). Anyway, you can use any of them, I like the one with no sugar. I add the recommended amount to one of my glasses of water in the morning, and if I'm having a bad time, then I also have another glass of it in the evening after dinner. It has made a remarkable difference in the pain and gas and (I'll try to be delicate), ummm explosion? that happens when I'm a bit stressed.

Try to get more rest and eat as healthy as you can. Hope you feel better in every way, real soon.

Link to comment
Share on other sites

Blackwolf, everyone here has given you some terrific suggestions. I can only imagine the stress you, your daughter and your family is going through. I hope that you have a good support network for you all... if you haven't considered counselling, it might be helpful to see someone who specializes in surving such terrible life events; obviously, the stresses from all this aren't going go away quickly...and some may stay with you forever to some degree. I'm certainly no expert in this area, but if you need help finding resources, I'd be glad to try to get info if you need it.

I suppose the only things I can add are what got me through several very stressful times in my life: enough sleep when you can get it, using the compression stockings or at the very least, some support panyhose to bloster my bp, eating on schedule, staying hydrated, and also talking to my friends and family either in person or on the phone...

Good thoughts to your entire family that you are able to find some more peacefulness in your lives.

Nina

Link to comment
Share on other sites

Thanks again. Yes, we will all be entering counceling over the next few weeks. I think that our daughter will have the hardest part of it and I feel she will benefit the most. She is young and I hope that by starting now, there will be little damage. I think the hardest part for me was not finding out earilier, before it got to this point. Again, thenk you everyone.

We will survive and get on with our lives. B):blink:

Blackwolf

Link to comment
Share on other sites

Blackwolf,

Just read your post. I am speechless. I can only say that I will send much prayer your way and hope that things will only get better from here. Wow, two huge whammys at once. ;) I am so sorry. No wonder you are not feeling well.

I sure hope that you are doing better now, I know it will be a long road for you and your family but I hope that you can find some peace(if that even makes sense) and be able to atleast take care of yourself and your daughter.

Lord knows this POTS thing is hard enough without those stressors but with them added on-----I need not say more.

However, like you said, You all WILL survive and you will be able to get on with your lives. Just take it one day at a time.

God Bless you and your family and please keep us updated!

Link to comment
Share on other sites

I just wanted to send positive thoughts your way...I can't imagine, as a mom, what you must be feeling right now. I can definitely see why you aren't feeling well- so while you help your family thorugh this tough time, remember not to neglect yourself because your daughter really needs you right now.

I hope that she can continue on with a normal life and that you all can heal from this tragedy ;)

Take care and get as much rest as you can, and take care of that precious little girl :(:):)

Link to comment
Share on other sites

blackwolf:

I just read your post and my heart goes out to you and your family. Thank goodness you recognize the need for counseling. I had two family members and one friend whose daughters were abused, one by a neighbor and two by an uncle, about the same age as your daughter. This was many years ago when going to counseling was not as readily available or considered. My neice sought counseling after she became an adult and it has helped tremendously, but she so wishes her parents had recognized the need for counseling when it first happened because of the struggle she went through especially during the teen years that followed the abuse(hers was much much worse than touching). The good news is she's a wonderful well rounded person with a great family and a great personality. She deals with it very well.

Most of all, recognize that every parent who gets news like this does a pretty good job of beating themselves up for not realizing it sooner, don't waste your energy on that - it serves no purpose and you are doing the best you can. Concentrate on giving her the love and support she needs to get over this - and she will, with your help.

I have no advice for your symptoms, but just wanted to write and let you know there as so many other people walking in your shoes and so many of us who support you and send you our strength. Good luck.

Sharon (grambertie)

Link to comment
Share on other sites

Again thank you all!!!

Just an up date, my brother will be making his first court appearence this Friday. As I understand it he will be charged with 22 counts of possition on child porn. and 12 to 15 counts of sexual assult on a minor. I hear from the detective on the case that he is planning on pleading guilty and forgoing the trial. I think I'm starting to calm down now. My Cardio finally gave me something for the racing hb, it's called theophylline. It was originaly used for asthma, I feel alot better and I do feel like I'm breathing better.

Again, Thank you for your kind thoughts and words.

Blackwolf

Link to comment
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

 Share

×
×
  • Create New...