nicole Posted October 28, 2003 Report Share Posted October 28, 2003 Hi everyone,I am wondering if any of you experience hair loss. I started on the proamatine- 2 months ago and now when I wash my hair I seem to lose alot of hair. Also, I am getting acne is this a side affect? Quote Link to comment Share on other sites More sharing options...
ethansmom Posted October 28, 2003 Report Share Posted October 28, 2003 I have used Pro-Amatine for quite some time now, and haven't noticed either of these effects. I will be curious to see what others have to say about this... sometimes strange side effects can show up after prolonged use of a medication. I hope thse pesky problems go away for you soon!! Quote Link to comment Share on other sites More sharing options...
pamyla Posted October 28, 2003 Report Share Posted October 28, 2003 I believe on the ndrf boards there was recently a discussion about hair loss due to beta blockers. Are you taking those too? Quote Link to comment Share on other sites More sharing options...
POTSparent Posted June 8, 2004 Report Share Posted June 8, 2004 This is sort of opening an old subject here, but I'm a newbie to this forum. About 6-mos ago, my 17-yr old POTS daughter lost every single hair on hair on her within a 72-hr period with most damage complete within 48-hrs. With POTS, we'd come to expect odd symptoms, but in no way were we prepared for this one. She lost the hair on her head, her eyebrows, arm hair .... about the only area spared were her eyelashes and they thinned. Not a welcome turn of events for one's senior year in high school.All the tests one would expect were run including thyroid, lupus, drug & toxin screening, etc, and they came up negative. A scalp biopsy was done as well.When it was all said and done, the medical "best guess" was that our daughter had a severe reaction to the beta blocker Nadolol which she had just started about 3-mos earlier on a switch from Toprol XL. The explanation was that the reaction had reset "the clock" on all the hair follicles so that they fell out near simultaneously instead of on a staggered hair cycle schedule. But it wasn't a conclusive opinion. But we stopped the Nadolol and indeed her hair started growing back (still too slowly for her).So what's "the story" on beta blockers and hair loss that was mentioned in the prior post? She was also taking Zoloft at the time, but that was discounted as the culprit. I'm indeed curious. Don't want to repeat the past on this one. Quote Link to comment Share on other sites More sharing options...
briarrose Posted June 8, 2004 Report Share Posted June 8, 2004 I don't remember the previous post on this topic, but I had increased hair loss prior to being diagnosed with POTS. I made an appointment with my primary a year before the tachycardia started. She gave me some song and dance about how people lose so many strands of hair a day. I tried to impress upon her that I could take hand fulls out of the back of my head during a shower. She didn't believe me because I couldn't do it during my office visit. Quote Link to comment Share on other sites More sharing options...
DLD Posted June 8, 2004 Report Share Posted June 8, 2004 Some of the kids in DYNA (www.dynakids.org) experience hair loss (my own daughter included). I was told by Dr. Grubb that in our case my daughter's hair loss was a side effect of long term use of Florinef. We took her off Florinef last year. Her hair immediatly responded but she could not function without the Florinef so we had to add it back in 6 months later. Once again, her hair started falling out. We just stopped the Florinef again and immediately her hair is coming back in and responding. In her case it is obviously the Florinef long term use (over 4 years). We have added Licroice Root to compensate for the Florinef and we are hoping that will work this time. At age 13 you pick having hair over standing if it comes down to it.I know of two other girls in DYNA who both recently experienced extreme hair loss (everywhere). One was told by her doctor that it was from lack of circulation and the other was told it was the stress of the condition itself. Quote Link to comment Share on other sites More sharing options...
calypso Posted June 8, 2004 Report Share Posted June 8, 2004 I do not take Proamitine but I did have significant hair loss a couple months back (which is when my pots was at its absolute worst). I had just had a baby and I know it's common to lose some hair postpartum, but I lost tons, plus the hair on the backs of my hands and my legs disappeared. I have no idea what causes it. I would think it has something to do with cortisol or hormones; I read somewhere recently that increased levels of cortisol (which our bodies release when we are under stress, including an illness like pots) cause hair loss. Quote Link to comment Share on other sites More sharing options...
anecius Posted June 8, 2004 Report Share Posted June 8, 2004 I just wanted to add that hair loss is a side effect of a number of medications, a side effect that can have a delayed onset. The reasons are varied. Often times, the medication depletes the body of a vitamin or mineral that is necessary for hair growth. I take a prescription dosage of folic acid daily to help combat hair loss, not to mention for its cardiovascular benefits. Other B-vitamins, and the mineral Selenium can also help. Quote Link to comment Share on other sites More sharing options...
briarrose Posted June 8, 2004 Report Share Posted June 8, 2004 I like calypso's explanation, it would make more sense for me since I had hair loss before I started any of the POTS medication. The only thing I ever took before 2 years ago was my synthroid and pepcid. I hated and even refusesd to take meds. That all changed when I developed POTS. I still hate taking so many drugs though. Quote Link to comment Share on other sites More sharing options...
Deb Posted June 9, 2004 Report Share Posted June 9, 2004 I have lost all of the hair on my arms, most of it on my legs and under arms, but so far my head, eye lashes, and eye brows have been spared. I was on midodrine and florinef for six months, but my doc had no idea, nor offered an opinion. I think it is somehow related to hormones, too. Quote Link to comment Share on other sites More sharing options...
Aprilmarie52 Posted June 9, 2004 Report Share Posted June 9, 2004 I have been on florinef for 4 years and I have not noticed any hair loss. I guess that it varies person to person. Quote Link to comment Share on other sites More sharing options...
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