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dsdmom

Fatigue

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I'm still pretty new at this dysautonomia stuff and was wondering if the fatigue I have been feeling is "normal." It is way past being tired - it's almost like being drugged. I could go to sleep in the busiest, loudest, brightest place no problem. Is THIS what you all mean by fatigue or does this sound like something else?

Thanks!

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That fits with my definition of fatigue. It's how I often feel. I often fall asleep at the drop of a hat.

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It doesn't seem to matter HOW much sleep I get -- I still am sleepy. I used to blame it on the Paxil. Now I think it's POTS.

I fall asleep in the car, at my desk at work ... sometimes caffeine -- in the form of tea both iced and hot -- is the only thing that keeps me going.

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Guest Eliza

I think that is fairly typical of chronic fatigue syndrome which tends to go along with POTS! I am sorry you are having to deal with that because to me I feel like that can be one of the most debilitating parts of this illness!

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sounds like my fatigue...that i've had to varying degrees/ extremes during all of my years of dysautonomia. i take some meds specifically for this reason though they by no means eliminate the issue.

my docs have always attributed it as part of my autonomic dysfunction, as the CFS diagnosis mandates that there are symptoms/ signs not explained by other diagnosis/ illness; for me the fatigue is explained by the dysautonomia. for some with other issues, i.e. sore throat, they may receive a CFS diagnosis b/c autonomic dysfunction wouldn't give reason for a sore throat. and - in general - there are sort of two schools of thought in regard to whether CFS & autonomic dysfunction are mutually exclusive diagnosis. i've written more extensively (and probably more clearly) about this in the past so let me know if you're interested & i'll try to find my posts. all in all though it wouldn't be true to assume that those with a CFS diagnosis have more issues/ struggles with fatigue than those who don't have the diagnosis; though it's not an issue for all, many with various ANS issues struggle with fatigue to varying degrees.

i have sleep apnea (thought to be part of my autonomic failure) and while treating it has helped with my sleep quality and - with some recent changes in my treatment - my mornings aren't AS rough as previously, i still never feel entirely rested. as others have described, this doesn't mean i'm always sleepy (though sometimes this is the case) but rather that there is always some level of fatigue.

i will also add that my fatigue tends to correspond - to some degree - with my orthostatic intolerance/ hypotension & how well it's controlled/ treated &/or how much i've pushed past my limits in that regard (sitting upright these days, though in previous years it meant standing/ walking).

hope this helps,

:) melissa

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I think that when I wrote my book I described it as being SO tired that even laying in bed wore me out... I wanted to melt into the mattress, and no amount of rest or sleep would help.

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Has anyone had any success with treating the fatigue? Would love to find something that helps!!!!!!

mary

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When I went on Metoprolol, the fatigue dramatically improved! I still have bad days, but not NEARLY like before.

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I have days where lifting my arms seems like a gargantuan effort. I am starting to feel like my hubby has osmosed his narcolepsy to me. I wouldn't feel rested if I slept 23 hours a day.

I think part of it, something we don't think of sometimes, is a lot of us have chronic pain and therefore our sleep is more interrupted than we think it is. Which, in turn, causes daytime fatigue we don't understand. If we don't wake all the way up, but never get the deepest sleep for any length of time, it will certainly affect our stamina. And tachy certainly doesn't help. Treadmill 24/7.

I haven't found anything that helps except to take a short nap, if my body just refuses to let up. If I sleep very long, I feel awful, but a 20 minute nap seems to give me a bit of a second wind. Other than that, no good suggestions....morgan

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Yep, the fatigue can be extreme. It is beyond what you can even describe to a healthy person. It just doesn't make sense. Even resting can be exhausting. :)

Rachel

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This is the exact fatigue we are talking about.

It is good to hear(read) some of your descriptions. I echo them all.

I just wish others had a taste of the fatigue we experience so they would have a better idea of what our bodies feel.

Maybe they would stop insisting I exercise!!!

Dari

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Melissa/Sunfish

I would love to see what else you have written on this in the past - let me know if you find some of your posts. I guess I'm confused as to whether or not my fatigue could be from CFS or not. No sore throat but COMPLETE exhaustion for days after having a party for my daughter this weekend.

Thanks!

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Guest tearose

Yes, that is my kind of fatigue too.

I can do something and then need days to bounce back.

Heaven forbid I get sick while recuperating from a busy activity! I may be out of commission for a long time.

I know it is fatigue when I want soo much to do something and my body feels like a rag doll. The body feels heavy, I have no stamina and even typing on a keyboard wears me out.

I have no sure way to get over it. I try to use more hydration and electrolytes but rest and light activity is also important.

take care,

tearose

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I found this quote... that best defines my fatigue:

"This illnes is to fatigue, what a nuclear bomb is to a match. It's an absurd mischaracterization." Laura Hillenbrand (author of Seabiscuit)

Whether or not it is my dyautonomia or an indication of the cause of my dyautonomia, I have yet to figure out. But it is understood by the specialists to be a common complaint.

~Roselover

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Guest tearose

I like the way I "see the four foot wall of jello" morgan, but it makes me shutter and feel too cold to walk through it.

I may try to come up with a warmer think, liquid...say walking through mud or quick sand...

hmm,

still thinking..

tearose

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The jello analogy is interesting, but I can totally see it and understand what you are saying! I love it! :)

Jello is kinda freaky though!

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