roxie Posted September 9, 2007 Report Share Posted September 9, 2007 I have this problem and I wonder if it's common in POTS or if it's just me. I have been sick for 10 years and have tried TONS of meds, but nothing helps that drastrically. My best combo has been florinef/mestinon/prozac,that got me to maybe 30% functioning on a good day. Out of the blue last spring, my bp went high and didn't go down until I cut all three meds in 1/2. I haven't been able to get stronger on this lower dose, but I notice this happens with almost every med. I take it for a while and then my body seems to get tired and almost rejects it, usually in the form of hbp, but not always. Does anyone else have this? Right now, I am beyond frustrated and at the end of my rope b.c I desperately want to be stronger , but I have no idea of what to do next? Has anybody started and stopped only to retry meds? What about rounds of like 6 months on different meds and then switch? Does anyone have any ideas? I have been on: florinef prozac elavil birth control procrit dexadrine midrodrine mestinon and prob some others I can't rememberMadeline Quote Link to comment Share on other sites More sharing options...
Ernie Posted September 10, 2007 Report Share Posted September 10, 2007 Hi,My mind hates meds but my body craves them. I can't stand, sit, feed myself, wash myself without them. Quote Link to comment Share on other sites More sharing options...
flop Posted September 12, 2007 Report Share Posted September 12, 2007 So far with POTS meds I haven't stopped any, just added more to the mixture.However I do seem to build up a tolerance to antihistamines for my hayfever. They will work for a couple of years then the seem to be less effective and I have to change to a different one. Sometimes going back to an old one does help more than it did at the time that I stopped it.Flop Quote Link to comment Share on other sites More sharing options...
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