thejohnsongang Posted August 27, 2007 Report Share Posted August 27, 2007 (edited) Hey everyone. I am having some personal issues dealing with my daughter right now and could use a little support from all my POTS friends. My daughter (16) has POTS, EDS and Von Willebrand and has been having problems with her GI for months now. She is scheduled to have a motility test done on the 30th at John Hopkins Hospital and will be staying overnight for more testing on the 31st. She is having an colonoscopy, endoscopy, and manometry with TTT. Im nervous, scared and it's causing my POTS symptoms to act up like crazy. Anyone had these done? Know what it's like?She has been experiencing vomiting, nausea, cramping, diarrhea, constipation etc. since Jan. We finally got the doctors to do more testing, now I'm scared to death. She has to have DDAVP prior to her procedures and I'm very nervous about her bleeding. Any advice? I will be off line for a couple of days while we are gone. I'm going to stay with her, but my husband can't get off work. He will be down on Thur. during the day, but Thrusday night and Friday I'm on my own and I'm scared I'm going to have a spell while I'm there with her from all the stress. HELP.... Edited August 29, 2007 by MightyMouse fixed spelling/subtitle Quote Link to comment Share on other sites More sharing options...
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