Iv Saline Treament

[friday]

Just wondering if anyone is or has tried the IV saline treatment. I know it requires a trip to the docs office or hospital, and it 's probably not cheap but I thought some here may have tried it.

I was wondering if you did , how did it make you feel? Did it help? And if you are still doing it, How are you receiving treatment?

Going to your docs office? How often?

[DancingLight]

Friday,

I recommend that you do a search on this topic, as it has been discussed in a LOT of detail in the past.

I just did two searches:

1. A Topic Search for IV Fluids and came up with 9 topics about this

2. A Topic Search for IV Saline and came up with 6 topics on this

So, this should give you a LOT to read and hear people's experiences. I think you will find answers to all of the questions you are asking.

Also, I saw your post on Dr. Bell asking if he has done studies on this. I do not know the answer to that, but POTS patients have been using (and have been prescribed) IV Saline for a long time now as a treatment option. My understanding from my ANS specialist is that it works for some patients and we don't know why it works, but it does so that's what matters.

If you do not know how to do a search...let us know. I just went to 'Search' in the upper righthand corner, clicked on 'more search options' typed inthe topics i listed above, and then said search 'topic titles only'--this last part is important or you will get a zillion hits.

Hope this helps,

Emily

[friday]

thanks, that helps a lot!

[goldicedance]

Ditto to what Em says. (BTW, Em, my husband has a Buick Rendezvous and he loves it. He prefers it to my Lexus SUV. That's fine with me!)

As to why IV saline seems to work (from what I have been told), is that the IV fluid goes into your blood stream. On the other hand, when you drink volumes of fluids, you urinate volumes of fluids. There is some system in your body that helps prevent fluid overload to prevent sodium imbalances and to prevent you from bursting at the seams. This is not the most elegant or scientific way of describing the phenonomenon.

Lois

[BEE]

tHOUGHT i WOULD CHIME IN THAT i AM SETUP TO GO FOR iv FLUIDS AS NEEDED..BIGGEST THING IS TO MAKE SURE THAT IT IS INFILTRATED OVER HOURS NOT A QUICK AMOUNT OF TIME..

SEEMS TO HELP ME A FEW DAYS AFTERWARDS..YET i STILL PEE MOST OF IT OUT THE FOLLOWING DAYS.

gOOD LUCK..

[friday]

tHOUGHT i WOULD CHIME IN THAT i AM SETUP TO GO FOR iv FLUIDS AS NEEDED..BIGGEST THING IS TO MAKE SURE THAT IT IS INFILTRATED OVER HOURS NOT A QUICK AMOUNT OF TIME..

SEEMS TO HELP ME A FEW DAYS AFTERWARDS..YET i STILL PEE MOST OF IT OUT THE FOLLOWING DAYS.

gOOD LUCK..

So, when you say as needed how often and why would that be.

I'm just wondering if is ever given to patients, say weekly to improve their POTS symptoms.. or is it just given in an emergency state.

In my case I have a lot of trouble going places because I don't know if I'll be able to get back. In other words I'll feel alright to drive but there' s no guarantees I'll be able to get back home...so needless to say, I don't get out much at all.

also when I do get out. I can't go many places.I sometimes get the strength up to go to the dollar store or drug store places like that. but sometimes I have to take a wheelchair. even then I have t o fell well enough to push myself around. And then well enough to get the chair back into the van... I haven't been to the mall in years.

I don't have anyone to drive me places really. and I don't have anyone to push me in a wheelchair , so I am really stuck.

I wish I could have just a little more strength and endurance.

[DancingLight]

Friday,

yes, you can certainly get it weekly if you find that it works to help you function at a higher level.

usually if it helps you, you might get a good 48 hours of feeling better. I did saline txs every other day or every third day at my worst.

you will have to find what works for your body.

as needed can mean a lot of things!!!! lol.

as for bee's comment--each person is also different in terms of infusion time--i always had two liters over two hours--which is fast.

other's who do it at home, do a slower drip over several hours.

emily