anna Posted August 9, 2007 Report Share Posted August 9, 2007 Hi all,This Q. is for you guys that are EDSers as well.My kids cardiologist has suggested we try Fludrocortisone and slow release salt tabs for their POTS symptoms. The DR. assured us that this stuff was totally safe and so on, but when I picked up the script I found, on the do not use if section, a bit about not to use if you have asprin sensetivity or if you have gut problems. Well the thing is both my kids are unable to take Ibruphen (sp) or such like, as it causes gut pain and bleeding problems (EDS related) and both kids had been diagnosed with infantile colits when younger. We have a long history of ulcers in myself and my EDS family members. I am not sure what to do about this med, I can not get hold of the cardiologist and he does not know anything about EDS anyway. So I wander if any of you EDSers use this med without problems.Anna Quote Link to comment Share on other sites More sharing options...
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