Adria Posted August 8, 2007 Report Posted August 8, 2007 Hello Everyone,I am new to the DINET forum however I am not new to POTS. I was diagnosed in June 2000 at the Mayo Clinic in Rochester MN by Dr. Philip Low after a positive TTT. I also had some additional autonomic nervous system testing conducted at Vanderbilt University in TN. I wanted to let everyone know about a supplement called Acetyl L-Carnitine. It's an herbal supplement that can be found at Whole Foods, GNC, or CVS. The supplement is often recommended for individuals suffering from Alzheimer's Disease and Dementia. Acetyl L-Carnitine usually comes in doses of 500mg or 250mg. I have been taking the 500mg tablets for the past 2 weeks and I have experienced a substantial improvement in my concentration as well as my short-term memory. I have also noticed an increase in energy as well. The supplement helps your body to convert food into energy in a more efficient manner. I have been taking 500mg every morning on an empty stomach as indicated on the bottle and I am very impressed with the results and I have not experienced any side effects. I am planning to increase to 1,000mg next week. I know some POTS patients that are taking as much as 3,000mg but I plan to talk to my cardiologist before making a decision to take such a large dose.Dr. Grubb has also recommended a prescription supplement called Cerefolin NAC for treating brain fog. It consists of B-12 and folate. I have talked to other patients who have used this product and they experienced an improvement in their short-term memory and ability to concentrate. Some even experienced a more elevated mood. I plan to request this medication from my cardiologist, Dr. Abdallah, when I go to see him next week. Quote
Ernie Posted August 8, 2007 Report Posted August 8, 2007 Hi,I took Carnitine for a year and it did help but in the long run I had to stop because it was giving me stomack cramps and diarrhea. Quote
BEE Posted August 11, 2007 Report Posted August 11, 2007 Im currently on carnitor the prescription form and also starting the Cerefolin.. Quote
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