tiger Posted June 24, 2007 Report Share Posted June 24, 2007 Just wondering if anyone had this side effect of taking mestinon. I have been taking it for myasthenia gravis and it was helping, but then after taking it for a couple weeks it made me feel very foggy, to the point where I felt a little confused. Finally something that helped made me feel so bad. I called the office and they said it shouln't do that, well it did! I feel that it aggravated my POTS symptoms and now I can't take it. Having a very hard time with my medicines, very MISERABLE!!I don't think my doctor knows what to do anymore. Quote Link to comment Share on other sites More sharing options...
roxie Posted June 24, 2007 Report Share Posted June 24, 2007 O SARA, I am in the same boat as you. After a year and a half of mestinon and making the best progress I have in 9 years with it, my body has decided to not tolerate it by causing muscles cramps and hbp, grrrr My dr doesn't know why or what to do either, so I am feeling desperate b/c on half the dose of florinef and mestinon I can't do nearly what I was able to do before, it's SOOO frustrating I don't have any answers for you, but just want you to know I know what you are going through and it is awful ((( HUGS))))Madeline Quote Link to comment Share on other sites More sharing options...
tiger Posted June 26, 2007 Author Report Share Posted June 26, 2007 Thanks Madeline, it is hard having 2 different diseases. It seems that the medicines I take to treat one thing aggravates the symptoms of the other disease. I love your quote, Jesus take the wheel. Quote Link to comment Share on other sites More sharing options...
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