delphicdragon Posted June 13, 2007 Report Share Posted June 13, 2007 Hi Everybody-I'm so happy that I found this forum. Finally, I'm realizing that there are other people out there with the same peculiar symptoms that I have. First, a little bit about myself. I'm a graduate student, about to start my PhD in BioMedical Science focusing on Bone and Collagen Biology. I have EDS, diagnosed in 2005, after a roommate with the condition urged me to go to a geneticist (how random is that!) I'm a little worried about starting the PhD as it's a lot of work- but I'm hoping I can handle it. I was diagnosed with POTS in January 2007 and have been trying to research the condition as much as I can. Unfortunately, I can't take a lot of the medications that are supposed to help (Florinef makes me blow up like a balloon ). It's good to finally have a diagnosis. I was having what appeared to be seizures for about 3 years before someone called the EMTs and they couldn't get a supine blood pressure. A group of neurologists realized that there was something wrong with me because my standing heart rate was SO fast. (I've gotten it up over 200 on occasion) About a year of testing later, I finally had a diagnosis. Thanks for being there to provide answers when the doctors all seem clueless.Sara Quote Link to comment Share on other sites More sharing options...
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.