roxie Posted June 10, 2007 Report Share Posted June 10, 2007 I was looking through the NDRF handbook online and noticed a med that I had never heard of used for autonomic dysfunction before, it's called L-Dops. Had anyone tried it? Did it help?were there a lot of side effects?ThanxMadeline Quote Link to comment Share on other sites More sharing options...
lthomas521 Posted June 11, 2007 Report Share Posted June 11, 2007 I tried to sign up for a clinical trial of it but didn't fit the protocol. I think they were looking for people who had low levels of norepinephrine. My norepinephrine levels go way up when I stand up, so the problem wasn't a problem in secreting norepinephrine. I think the drug is being developed for multiple system atrophy, not POTS.L-DOPS is a precursor to norepinephrine. In other words, your body has to go through a several-step recipe in order to make norepinephrine. Some people are missing one of the enzymes necessary to perform one of the steps. L-DOPS is like having all but the last step done for you. It would get around the problem of the missing enzyme. http://www.sinaionsitehealth.org/neurology...trials/chronic/ Quote Link to comment Share on other sites More sharing options...
roxie Posted June 11, 2007 Author Report Share Posted June 11, 2007 thanx for the info! it might not be for me either Quote Link to comment Share on other sites More sharing options...
Sunfish Posted June 11, 2007 Report Share Posted June 11, 2007 thanks for the info. i'm definitely going to look into it myself as i do fit more into what it is being developed considered for. do you know if it's something already on the market or if it's only in the research stages?thanks! melissa Quote Link to comment Share on other sites More sharing options...
Lukkychrm42 Posted June 11, 2007 Report Share Posted June 11, 2007 I don't know anything about it, but do they not have a treatment that involves the enzyme itself? Or maybe the form isn't conducive to treatment or something...I dunno, it just sounds rather odd. Quote Link to comment Share on other sites More sharing options...
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