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Thoracic Sympathectomy=dysautonomia?


W&R_Mom
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I suspect that being born with hyperhidrosis (inherited from my father) could mean congenital dysautonomia.

I had an open thoracic sympathectomy in 1992 at age 28 for hyperhidrosis. My hands still sweated after the surgery. I do not sweat as much under my arms now. I have compensatory sweating as a result of the surgery. I sweat on my back, legs, head, face. I am now 43.

I underwent an endoscopic thoracic sympathectomy on the right side only in 2002 in hopes to stop the hand sweating. Did not work either. I had several complications as a result of that surgry.

Needless to say, I'm DONE!

I am experiencing fatigue, dizziness, nausea, hard to stand for any length of time,heart palpations, especially if I lie on my left side. My heart beats rapidly and erratically.

I am on disability since 2005. Retired high school math teacher. Yes, sweaty hands and all, I taught school.

Does anyone out there agree this may be POTS? I'm trying to get in to see a specialist.

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Many of your symptoms are ones that i too experience, and i do have POTS, however i am not a doctor so i cant say for sure that you do, or that you dont. I do however think that it would be a good idea to see a doctor who knows what to look for and how to properly diagnose POTS in someone.

From reading you signature i saw that there were alot of other things going on in your body too, so there is the chance that it could just all be from those other factors. Sorry im not much help, best of luck to you!!!

One question for you though, i see that your have RSD, i was just wondering what it was like, because alot of my doctors say yes i think you have RSD, but then i went to a specialist and he looked at me for 5 seconds and sent me out saying that i didnt have it. Just wondering what it is actually like and not just what i am told, i realize that every person is going to be different and i cant gage it just off of your symptoms from it, but i just wanted to get someone's point of veiw who is experienceing the problems.

thanks, have a great day!

Mary

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  • 1 year later...
I suspect that being born with hyperhidrosis (inherited from my father) could mean congenital dysautonomia.

I had an open thoracic sympathectomy in 1992 at age 28 for hyperhidrosis. My hands still sweated after the surgery. I do not sweat as much under my arms now. I have compensatory sweating as a result of the surgery. I sweat on my back, legs, head, face. I am now 43.

I underwent an endoscopic thoracic sympathectomy on the right side only in 2002 in hopes to stop the hand sweating. Did not work either. I had several complications as a result of that surgry.

Needless to say, I'm DONE!

I am experiencing fatigue, dizziness, nausea, hard to stand for any length of time,heart palpations, especially if I lie on my left side. My heart beats rapidly and erratically.

I am on disability since 2005. Retired high school math teacher. Yes, sweaty hands and all, I taught school.

Does anyone out there agree this may be POTS? I'm trying to get in to see a specialist.

Hi,

I have had Palmar Hyperhidrosis and underwent Sympathectomy in Febr.2007. It turned my life upside down. I got all the possible side-effects (I do not mean all the side-effects disclosed by the surgeons who offer the surgery, I mean all the side-effects that are described in the medical journals by doctors who investigate the effect of sympathectomy. And there are many). I have a long and very similar list of symptoms as you, and not sure if it will help in any way, but there are many on other forums who have similar symptoms as you and I after this surgery.

I had a T2 cut, and it significantly affected my heart rate (bradycardia and abnormal beats, chronotropic incompetence - 70%), disabled thermoregulation, Hypothermia and hyperthermia on different parts of the body - at the same time, disturbed circulation, dyspnea, etc etc)

The last diagnosis I had was dysautonomia, but nobody was able to address my condition and ended up being handed from specialist to specialist - at a great cost. That is why I joined the forum, because I am hoping that I will be able to glean enough informaiton form here that will allow me to deal with at least some of my symptoms.

As to complicate my situation, I am also trying to deal with enormous grief and anger (rage), as all these symptoms/effects of sympathectomy have been described over and over in the medical journals, but the doctor choose not to inform me. I find that very difficult to deal with. My GP, and several specialist - not performing the procedure - I saw after were familiar with the consequences, so there is no excuse for the operating surgeon. It is a destructive surgery which indeed has the capacity to surgically induce dysautonomia.

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