lloppyllama Posted May 28, 2007 Report Share Posted May 28, 2007 Ok so lately i have been noticing that when i am sitting or standing my body sways back and forth and i am not the one making it do that. i guess it could be because i get very weak and faint so its like me kinda tipping over, but it is sooo continuos and equal that it doesnt seem like that. Does anyone else experience that??? Have a wonderful day! Mary Quote Link to comment Share on other sites More sharing options...
cardiactec Posted May 28, 2007 Report Share Posted May 28, 2007 I am completely not aware that I am even doing it - but the last two times the nurses in my PCP's office did sets of orthostatics on me, when I was standing, they told me that they noticed that I tended to "sway".........I have never noticed that I'm doing it, they picked up on it though... Quote Link to comment Share on other sites More sharing options...
flop Posted May 29, 2007 Report Share Posted May 29, 2007 I would often sway if I tried to stand still. Not an issue now as I avoid standing still - I either try to walk about or I am rising up and down / stepping in place to keep my calf muscles pumping to squeeze blood back to my heart from my legs.Flop Quote Link to comment Share on other sites More sharing options...
DanniBunny Posted May 29, 2007 Report Share Posted May 29, 2007 I do the same thing. It took a while, and a few mentions from other people, for me to notice. I'm not sure if its my POTS or my ear imbalance. I think the combination of the two is a fun mix for imbalance! I do notice that it gets more pronounced when I'm tired though. Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted May 29, 2007 Report Share Posted May 29, 2007 Yes, I had this symptom when my POTS was more severe.Katherine Quote Link to comment Share on other sites More sharing options...
yogini Posted May 30, 2007 Report Share Posted May 30, 2007 I also had this when my POTS was at its worst. Maybe our bodies move to keep our BP and circulation up. Quote Link to comment Share on other sites More sharing options...
lloppyllama Posted May 30, 2007 Author Report Share Posted May 30, 2007 Thanks for all the replies! I'm glad to hear alot of you also experience this, well not glad since its kinda creepy and all, but im glad to know that im not alone in experiencing this. Have a great evening!Mary Quote Link to comment Share on other sites More sharing options...
runningshoe Posted May 30, 2007 Report Share Posted May 30, 2007 I would tell my drs that I felt swirly. I don't even think that is a word but it's how I felt! Quote Link to comment Share on other sites More sharing options...
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