deucykub Posted May 5, 2007 Report Share Posted May 5, 2007 Hi everyone.I've posted about this a couple of times now, but this is driving me nuts. I'm not worried, but I'd really like to figure out the cause.Several parts of me turn blue - my feet and legs (blood pooling from POTS), my fingers and nails (seems to be two phenomena - one blood pooling, the other unknown), my lips and breasts (completely unknown).These are the things I have either tested negative for or have been clinically excluded: Raynaud's Phenomenon, Anemia, all testable autoimmune diseases, cardiac septal defects, restrictive and obstructive lung diseases (with the exception of asthma), and pulmonary hypertension.Here are the abnormalities: POTS, Mild Aortic Insufficiency, Asthma, some lung scarring, Compensated Respiratory Alkalosis, Low-ish Diffusion Rate/DLCO (70%/78%adjusted when symptomatic; 87% when not symptomatic), positive ANA (1:160 titer), and "tend to lose the signal" during pulse-ox (100% down to 96% during seated testing down to 92% during 300 ft walk).My lips get more blue on exertion and when I laugh. Some doctors say it could be POTS, but they won't explain the mechanism. I can't get a straight answer on hypovolemia. Other doctors shrug their shoulders with a concerned look except for my Pulmonologist who thought my shortness of breath was psychological. Then there's my uncle, a practitioner (Nursing PhD), who simply says, "POTS doesn't make your lips turn blue."Do you have any thoughts? Do you have this symptom, and if so, did your doctors figure it out?Thanks for any input you might have!All my best! Quote Link to comment Share on other sites More sharing options...
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