pat57 Posted March 12, 2007 Report Share Posted March 12, 2007 if you don't mind, can we get an update on how your feeling? My quess is that your being carefull not to engage in a pity party- or the appearance of one. And so have swung the pendulum to the other direction. IE saying very little.How are you? Quote Link to comment Share on other sites More sharing options...
Guest tearose Posted March 12, 2007 Report Share Posted March 12, 2007 She's been posting...but how IS she feeling?good question...tearose Quote Link to comment Share on other sites More sharing options...
Sophia3 Posted March 12, 2007 Report Share Posted March 12, 2007 Thinking of you Sunfish. Quote Link to comment Share on other sites More sharing options...
DancingLight Posted March 13, 2007 Report Share Posted March 13, 2007 Hello all!I am glad that I logged on for a second. I haven't talked to Melissa today at all and just briefly over 'chat' the past couple of days to check on her.She's having HORRIBLE, excruciating stomach pain that she is not sure of the root cause of. I hope that she will not mind me posting this update.She's really not feeling well at all...she had been a bit more stable, but these past few days have been really, really bad.Also, it just takes her so much energy to do all of her meds and ivs and such that she doesn't have time for much else. All of the new adjustments and dealing with new realities are a lot right now...THANK YOU FOR CHECKING ON HER....YOUR TIMING COULD NOT HAVE BEEN MORE PERFECT AS SHE COULD REALLY USE SOME EXTRA HEALING THOUGHTS AND PRAYERS FOR COMFORT AND PEACE.She has been able to read on the forum and post a bit before this latest saga...so you are right that she has been posting a bit more.Emily Quote Link to comment Share on other sites More sharing options...
Lukkychrm42 Posted March 13, 2007 Report Share Posted March 13, 2007 I just want to spread some more love, Melissa!!! Hope you're feeling better soon.Love and hugs,Megan Quote Link to comment Share on other sites More sharing options...
Sophia3 Posted March 13, 2007 Report Share Posted March 13, 2007 haven't been here much and missed her posting.thanks em for the update.Positive healing thoughts Melissa.sophia Quote Link to comment Share on other sites More sharing options...
JaneEyre9 Posted March 13, 2007 Report Share Posted March 13, 2007 So sad to hear about the stomach pain ((((((Melissa))))))) Big hug Quote Link to comment Share on other sites More sharing options...
Rachel Posted March 13, 2007 Report Share Posted March 13, 2007 Thinking about you, Melissa.I'm sorry to hear about the stomach pain. I will keep you in my prayers.Hugs,Rachel Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted March 13, 2007 Report Share Posted March 13, 2007 So sorry to hear about the stomach pain.Katherine Quote Link to comment Share on other sites More sharing options...
corina Posted March 13, 2007 Report Share Posted March 13, 2007 melissa,i?m thinking of you and i'm sending good thoughts. we want to keep you out of the hospital, okay!!!love,corina Quote Link to comment Share on other sites More sharing options...
nadine Posted March 13, 2007 Report Share Posted March 13, 2007 hope you soon have some relief and better days!!! Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted March 13, 2007 Report Share Posted March 13, 2007 Oh Mellie, I wan't you to know that I'm thinking of you and sending you the best healing thoughts I can muster...~~~~~~ ~~~~~~~ (<- that's me concentrating).nina Quote Link to comment Share on other sites More sharing options...
Guest dionna Posted March 13, 2007 Report Share Posted March 13, 2007 i am hoping that you get better soon as well! best luck and wishes to you!dionna Quote Link to comment Share on other sites More sharing options...
Guest tearose Posted March 14, 2007 Report Share Posted March 14, 2007 Hope your tummy feels better soon.You need a break from all this!get well soon.tearose Quote Link to comment Share on other sites More sharing options...
juliegee Posted March 14, 2007 Report Share Posted March 14, 2007 Oh Melissa-I pray you find a new "normal" and things calm down for you. You deserve peace, happiness and light! Sounds like that tum of yours is not happy with your attempt at "rehab" with tube feeds. Any evidence that it's really helping that small bowel? I pray you figure it out with a minimum of pain and misery. Heal, sweetie. We love and need you here.Big Hugs-Julie Quote Link to comment Share on other sites More sharing options...
Dawg Tired Posted March 14, 2007 Report Share Posted March 14, 2007 Melissa... So sorry you are having such a struggle again! Here are some flowers - hope they brighten your day! Quote Link to comment Share on other sites More sharing options...
goldicedance Posted March 14, 2007 Report Share Posted March 14, 2007 Hope that you are feeling more comfortable, Melissa. I continue to think of you and keep you in my prayers.Lois Quote Link to comment Share on other sites More sharing options...
Maxine Posted March 14, 2007 Report Share Posted March 14, 2007 I hope your doing Ok Melissa----------------Thinking of you-------I hope your tummy pain is GONE soon, and you start feeling better----------I'll be praying for you-- Maxine :0) Quote Link to comment Share on other sites More sharing options...
Tessa Posted March 14, 2007 Report Share Posted March 14, 2007 Hi MelissaHugs for youI hope you will be feeling much better soon,Miss youLove,Tessa Quote Link to comment Share on other sites More sharing options...
Sunfish Posted March 14, 2007 Report Share Posted March 14, 2007 hello to all. and thanks for checking in with me.pat - for someone who doesn't know me all that well i'd say you have a pretty good read on me. that is on my not saying much at all being the opposite of where i'm really at, aka in truth i'd probably have way too much to say.physically, though, em summed it up (she was missing her job as the sunfish update correspondent? ). technically speaking i'm "stable" in that i'm home, which is of course great, but for the past week and a half or so the pain has been pretty bad. in truth i haven't had a day without GI pain in over a year so i'm used to tolerating a certain level but this is a different degree. and since my doctor hasn't called me or my home care nurse back i eventually had to take some pain meds on my own which i HATE doing without a doctor's okay. and they make me feel really disconnected but right now without them i'm curled up in loads of sharp pain. chances are it's "just" my intestines rebelling against the tube feeding b/c of their dysmotility but they've never given me this much pain before for more than about a day at a time. a day i can deal with....non-stop for over a week i cannot. i'm having to make decisions about when & how much to play around with the j tube feeds too b/c they seem related to the pain and i don't like not having any guidance on this from a doctor. part of me wants to find a new PCP but that would be so incredibly complicated that i can't even fathom it right now. i have an appointment on friday but in the meantime have been frustrated. and the pain as well as the pain meds mess with my sleep so that obviously doesn't help anything.i've also been having numerous problems with my mail order pharmacy (which my insurance requires) that has left me out of some meds and has been an endless source of aggrevation. it's still nowhere near resolved and my mom & i have both had to spend hours on the phone. and yep - the amount of time and energy that my medical stuff consumes is more than overwhelming & exhausting. honestly i hate it & am pretty darn weary of it all. and the fact that people get so darn excited that i manage to get something on other than pajamas or am not in the hospital is wearing on me a bit too. of course those ARE great things, but it starts to feel a bit like i'm 2 years old when someone walks in and says "wow, you got dressed today". and the reality is that i'd like there to be a bit more depth to my life than just managing to stay out of the hospital, ya know? but that's more of another post for another time perhaps. and then there's the whole reality that i'll be without insurance in three months time. but again...another post for another time. and a million and one other things i could ramble on about but won't for now b/c i really don't have the energy...i am reading though to keep up with all of you.... melissa Quote Link to comment Share on other sites More sharing options...
bttrflyamby1981 Posted March 14, 2007 Report Share Posted March 14, 2007 sorry I'm a bit late...but I'm glad you felt up to posting. Hope you get feeling better. (((HUGS))) Quote Link to comment Share on other sites More sharing options...
jhjd Posted March 14, 2007 Report Share Posted March 14, 2007 Sorry you've been sick! Hope you feel better soon.Next time somebody makes you feel small by congratulating you on dressing yourself, maybe you should just tell them that you're thinking about joining a nudist colony so that you won't have to go to all the trouble anymore! Quote Link to comment Share on other sites More sharing options...
pat57 Posted March 14, 2007 Author Report Share Posted March 14, 2007 Good to "see" you.Do you keep a journal? It is my opinion that whatever we experiance has value. You can speak to caregivers and others who are, or may, face debilatating painful health issues. Your paying a high price to be such a voice and I think it would be comforting to others but also for you because there is a purpose behind the ordeal. When others are helped because you have walked a path before them you will be blessed.I have some experiance in this, haveing been an alcoholic by the age of 18. You can imagine what situations I volentered for. The experiance has given me the ability to help others by which I am blessed. In no way am I motivated to help because there is a return. But I am grateful for it! I will help you with this- if I can.Let me know.((((((sunfish))))) Quote Link to comment Share on other sites More sharing options...
Rachel Posted March 14, 2007 Report Share Posted March 14, 2007 Dear Sunfish,Thanks for checking in. I'm sorry you're so tired and in so much pain. And I'm sorry you have to use so much of your precious energy to try to fix pharmacy and insurance problems. How aggravating.When you have the energy, feel free to ramble. Meanwhile, we're still thinking about you!Rachel Quote Link to comment Share on other sites More sharing options...
Sunfish Posted March 15, 2007 Report Share Posted March 15, 2007 pat -i'm definitely a journal-keeper by nature; i have a full box of full journals from over the years. and i'm a big believer in things having meaning & a purpose, though i don't believe we always know what that purpose is in the here and now. but my current reality is that i physically can't keep up with my medical routines and still have the physical stamina to journal. my ability to type/write is largely limited to the forum & to trying to keep my website a bit up to date. i would pay a million dollars to have the physical ability to journal regularly at the moment. but other than trying to keep in periodic touch with a few friends everything else is going toward survival...literally. so i really can't journal much these days. i truly don't have ANY time that isn't consumed by machines beeping, tubes leaking, caregivers coming in and out, etc. truthfully a lot of my reason for staying involved with DINET even when it takes all i have physically is b/c it's one of the few places i feel that i can give at least a bit - however limited - these days. melissa Quote Link to comment Share on other sites More sharing options...
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