jlmahon Posted February 20, 2007 Report Share Posted February 20, 2007 Hello. I was diagnosed with small fiber/autonomic neuropathy based on tests (sudomotor reflex test, tilt table test, skin biopsy) done at the Cleveland Clinic. I've been struggling with major swings in blood pressure and heart rate, gastroparesis, air hunger, migraines, and nerve pain for the past 3 years. Thankfully, I found Dr. Grubb last year. Finally a doctor who really understands!! He's been very helpful to me and is trying to get me on epogen. Unfortunately, I haven't been able to tolerate other meds, or they haven't worked for me. I'm sure others here can relate. Anyways, I look forward to "meeting" everyone here.Jenn Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted February 20, 2007 Report Share Posted February 20, 2007 Welcome Jenn. I am glad you found us. I am sorry nothing has worked for you so far. I hope you find a treatment that helps soon.Katherine Quote Link to comment Share on other sites More sharing options...
bttrflyamby1981 Posted February 20, 2007 Report Share Posted February 20, 2007 Hi Jenn, welcome, I hope you meet others who can relate to you. Quote Link to comment Share on other sites More sharing options...
Rachel Posted February 20, 2007 Report Share Posted February 20, 2007 Hello, Jenn.It is nice to meet you! I'm glad you found us. I hope you find this to be a helpful and caring place. Rachel Quote Link to comment Share on other sites More sharing options...
DSM3KIDZ Posted February 20, 2007 Report Share Posted February 20, 2007 Welcome to the group. Based on your dx we have alot in common. I hope you find treatment soon that helps.Dayna Quote Link to comment Share on other sites More sharing options...
Dizzy Dame Posted February 20, 2007 Report Share Posted February 20, 2007 Welcome! I'm sorry you have to be here, but glad you found us! We're a sick, but loving bunch, and hopefully you'll find many friends here Quote Link to comment Share on other sites More sharing options...
corina Posted February 20, 2007 Report Share Posted February 20, 2007 hi jenn,here's another welcome at the forum! although i'm sorry you have reason to be here, i'm glad you found us! people around here are very helpful and friendly, so please feel free to ask any questions you want, i'm sure there are enough of us who can share your feelings and who are able to help!corina Quote Link to comment Share on other sites More sharing options...
morgan617 Posted February 20, 2007 Report Share Posted February 20, 2007 This is interesting....but I digressWelcome to our little but growing bigger by the day world hanna. Hope you find the site helpful, supportive and informative...mamamorgan Quote Link to comment Share on other sites More sharing options...
Guest tearose Posted February 21, 2007 Report Share Posted February 21, 2007 Welcome aboard Jenn!I am sure you will find some good information here. It is good that you have confidence in your physician and I hope the medication is approved and helps you!best regards, tearose Quote Link to comment Share on other sites More sharing options...
persephone Posted February 21, 2007 Report Share Posted February 21, 2007 Hello Jenn! I was in your position too Epogen was a last resort, but it has helped me lots. Hope it works for you too :-) Quote Link to comment Share on other sites More sharing options...
AJVDK Posted February 21, 2007 Report Share Posted February 21, 2007 Welcome Jenn! Nice to meet you, I hope you find lot's of new friends, and lots of info! Quote Link to comment Share on other sites More sharing options...
deucykub Posted February 22, 2007 Report Share Posted February 22, 2007 Hi, Jenn:Just writing to welcome you to the group. The people on this site are so supportive, knowledgeable, and empathetic. I'm sorry you haven't been feeling well and hope you find some solutions to your health issues.Take care!Deucykub Quote Link to comment Share on other sites More sharing options...
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