P SUDIK Posted January 28, 2007 Report Share Posted January 28, 2007 Hi this Pat in mentor, oh. 59 year old woman with pots,am interested to know of any doctors, any of you recommend in Cleve. Ohio or eastern suburbs? I have seen Dr. Fouad at Cleve. Clinic.She dx me with pots.but anthing she tried did not work. It has been 4 yrs that I have pots,dx for only 3 yrs.Also interested in knowing if there are many people over 40 with pots, I seem to be the oldestwoman!I am also very interested to know ,if anyone knows how they got pots? I got pots after an extensive lowerback surgery and an infectin in the surgery site.I also have gastoparisis,urinary incontinence all since the surgery.I was healthy before surg. Love to hear from you.You can E-mail at pat-s310@sbcglobal.net Thanks Pat Quote Link to comment Share on other sites More sharing options...
SunsetParadise49 Posted January 29, 2007 Report Share Posted January 29, 2007 Hi Pat, Check out our physician page, http://www.dinet.org/physicians.htm. Dr. Grubb is in Ohio. Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted January 29, 2007 Report Share Posted January 29, 2007 Pat, you're definitely not the oldest--I have you beaten by a few years. Also, my friend Lloyd is...well...older, I'm guessing here that he's pushing 70 now and still ticking despite POTS.Nina Quote Link to comment Share on other sites More sharing options...
kmpower Posted January 29, 2007 Report Share Posted January 29, 2007 Hi Pat,I have not been dx'd with POTS, but have episodic postural tachycardia and orthostatic hypotension, so I am close. I am older than Mighty Mouse, but younger than her friend.I wish you good luck finding a doc. I am on the west coast so have no knowledge of your area.OLL Quote Link to comment Share on other sites More sharing options...
bgsu4 Posted January 29, 2007 Report Share Posted January 29, 2007 Hi Pat, Dr. Chelimsky at University Hospitals is very good. He is a neurologist and I have been seeing him for almost a year. I went to Dr. Fouad but thought they were way to busy and it seemed like they didn't really manage the syndrome as well as they diagnosed it. Dr. Chelimsky has a great personality and is very easy to talk with. Quote Link to comment Share on other sites More sharing options...
yikespanic Posted January 30, 2007 Report Share Posted January 30, 2007 Hi Pat,No your not the oldest, I am 44 and I was diagnosed Last year with POTS by Dr. Fouad also. Right now they think I got pots after a virus in Dec of 2004, and that virsus was possibly LYME disease. I see Dr. Grubb in Toldedo once every 6 months now, and Bev his NP on the other 6 month appt, thats 2x per year unless I have a problem that they can't help with over the phone. I can tell you Dr. Fouad is excellent with diagnosing and testing, the best says Dr. Grubb, but she is not their for the long run. When I went to see Dr. Grubb he changed my entire treatment plan, and it has made a difference for me. Dr. Chelimsky at University Hospitals is also reccommended by many, I haven't seen him because he is not on my insurance plan, if he was I would try to. Kim Quote Link to comment Share on other sites More sharing options...
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