nadine Posted January 19, 2007 Report Share Posted January 19, 2007 Hope things soon get better for your family. Quote Link to comment Share on other sites More sharing options...
willows Posted January 19, 2007 Author Report Share Posted January 19, 2007 Well I just dont believe it............... poor Mike , you will never guess whats happened to my son now .He went into college on Monday and sat his first exam on Tuesday , as he hadn't seen his girlfriend for almost a week he bought her a large bar of her favourite chocolate and went looking for her , when he found her she turned round and said ' I dont know why I ever went out with a boy like you ' and walked away leaving Mike open mouthed wondering what on earth he'd done to her He couldnt get her to talk to him after this and eventually came home that night very upset , we spoke for sometime and as far as I can see she has just called him some awful names and will not answer any of his questions as to what he'd done .I called her mum and asked her to get her daughter to speak to Mike on the phone as I said this was very distressing for him and that he had another exam today and needed to know what was going on , for as far as he was concerned he last saw her in hospital and she was fine , yet now she's calling him all sorts of horrible names...........her mum said she would speak to her than night.Mike went in yesterday and she had not spoken to him on the phone , later via one of his mates she told him quote ' you are to nice , to romantic and you treat me to well , so I dont want to go out with you any more' ...................my son and his mates all stood around with there mouths open and didn't know what to say , as neither did hubby and I !In the end all I can say to my son was this ' well Mike , I've heard of some strange things for being dumped by girlfriends , but son this is the best one yet ! you should feel proud of yourself for being such a nice guy, and if this young lady didn't like being treated well then thats her problem , not yours , paying for her to go out , buying her flowers and chocolate is not a sin or anything to be ashamed about '..........and his mates all agreed.Today he has another exam and he's gone off worth yet another course of tablets to take , yet another sort that the doctor is trying in an effort to stop /sort this constant pain and now horrendous tiredness that he has .But the strange thing is .........................having been dumped by this young lady , mike is now the talking point of the college and all of her friends and another 30 + girls at the college are all eager to make friends with him , in fact he's had so many girls come up to him and ask him is it true why she dumped you , that he feels a bit of a celebrity, even his tutors have spoken to him about it so this must be the first in history for being dumped because you are caring , kind, considerate and generous .........some mum's would die for a lad like this for there girls.............well mum's he's available and he is a real catch .Willows................gobsmacked at the stupidity of some girls. Quote Link to comment Share on other sites More sharing options...
corina Posted January 19, 2007 Report Share Posted January 19, 2007 oh, girls!!!!!!!!!!!!!!!!!!!!!!!!!!!well, i am sure she will regret this when she is 25 ami (i do know this won?t help mike, but now that he?s a celebrity other girls will know where to find him)!!!btw ami, i was wondering how you guys in england were doing with the terrible storm yesterday. i've been thinking about you all.my family and i live about 15 km's from the west coast of the netherlands and had a really bad time yesterday. fortunately today is much better!corina Quote Link to comment Share on other sites More sharing options...
Guest tearose Posted January 19, 2007 Report Share Posted January 19, 2007 hoping better days are ahead for you and your son willows!tearose Quote Link to comment Share on other sites More sharing options...
willows Posted January 20, 2007 Author Report Share Posted January 20, 2007 Thanks for your replies guys, I'm sitting here typing with one finger now , OH .............silly me !Last night was up with one of those nights when your whole body's going to explode , so wandering about downstairs I thought I'd clean the oven door ( no I'm not going mental) So there I was at 3 am trying to shift a bit of burnt on stuff , ah ............I know I'll do I'll cut the stuff off with the edge of one of my super-duper-extra -sharp as a samurai sword knives ............it slipped somewhat and decided to cut into a section of my index finger , but as this section was below the main joint , it sliced a one and a half inch section into the fleshy bit instead ..................OWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWW ..........so I spent the next few minutes trying not to run blood over the kitchen units, sink, floor or medical chest . Poor old finger is not wrapped up in a bandage and is SO sore , never again , no, no , never again. Mikes feeling a bit better now, the third lot of tablets he's now on seem to be helping , he's going to see the consultant again the second week in February , just before we go away for a week , so hopefully things should be even better by then.We did have bad winds here , but we had no damage , next door lost its fence and my friend in Suffolk lost half of her tiles of her main roof and a gable end, this took off and crashed down into her lawn , so hard that they cannot get it out ! So things are getting back to normal here now , thank goodness .I'm starting to think about my next Halloween event in October , I have just heard that the last one raised just over ?600 , I'm a bit annoyed as I didn't put in one expense for all of the time, items and petrol we used , yet the other group who I worked with put all there's in , even down to cups of coffee and food , what a cheek I wouldnt dare do that . So I'm now putting out as SOS in the city for things I need again , all sorts of strange stuff so I can add to my collect on and make this one even better than last years. I'm hoping to be able to talk a local college into painting me backdrops for the shop instead of using just plain black fabric which is boring , so keep fingers crossed foe me ( well I cant cross mine with all my bandage on can I ) Well by for now all ..............sore finger and I will be back later AMI. Quote Link to comment Share on other sites More sharing options...
Guest tearose Posted January 20, 2007 Report Share Posted January 20, 2007 Your strong positive attitude serve you well dear willows!You just dealt with a multitude of difficulties and now you are able to think about October!!! Sometimes when things are tough, I think it is out ability to see "better things ahead" that help us over the rough times.have a lovely weekend,tearose Quote Link to comment Share on other sites More sharing options...
willows Posted February 4, 2007 Author Report Share Posted February 4, 2007 Well Mikes' well and truly 'back to normal ' again guys.Its still a mystery what went wrong with him , yesterday I got a letter from his consultant telling us that the biopsies they took from his stomach were all OK , thank goodness .We go next week to have a natter with him at the hospital and discuss what we can do to ensure this sort of thing doesn't happen again, trouble is , if you dont know what the trigger is to Mike being so unwell how on earth are we going to know what to do or not to do to prevent it again I suppose its a bit like our condition a case of 'trail and error'I dont know if I told you guys this but when Mike was 4 years old I nearly lost him, it was one of the worst years of my whole life .Mike suddenly for no reason started to wee blood, they tested him for infections and all sorts of things , but nothing other than blood in his urine.This carried on for about 4 or 5 months on and off , then one day I was on the way back from town and I go a call from my housekeeper , she said that Mike had been in the front garden with the gardener and he was sitting on his toy pedal car when he had stood up called out 'John I dont feel.........' and collapsed onto the grass . John had grabbed him up ( he was so small and all blond and cute then ) and rushed into the house and called an ambulance , when I got home Mike was as pale as snow and going from stiff as a board to all limp and sweaty .He was rushed into hospital when he stayed in a coma for three days , attached to drips and monitors they really couldn't find out what on earth had happened to him ,then he just woke up as if nothing had happened, it took him about 2 weeks to get back to normal , he was just weak and tired all the time.Mike did this about 3 or 4 times that year , the last one being 2 days before christmas , this time he was running a temperature , passing blood and was delirious with it ! yet they could find NOTHING , once again he woke up , was pale , tired and weak but other than this he was fine . He was seen by professors from Addenbrooke's ( a specialist hospital ) and we had a huge conference about him to which about a dozen doctors, consultants and experts sat in so that somehow we could find a reason for all this.Everything in my house was tested , food, bedlinen, washing stuff, paint even the air. The garden was looked at , the dog , our staff , cars, his school ..............Nothing .So these incredibly wise doctors ( mostly male I might add ) sat there and decided that as he was 4 years old it must be because he had 'discovered himself ' ( if you get my meaning ) and that he was somehow giving himself an infection by 'playing with himself' and they came to the conclusion that Mike would have to have a low dosage of antibiotic for about a year or more until all the problems had cleared or he 'stopped ' what he was doing .NOW ..............I think by now you have some idea of the sort of person I am and I will not listen to any stupid ideas from anyone or put up with stupidity in any shape or form , so when these 'eminent doctors' came up with this wonderful diagnosis I stood up ( all 5feet 3 inches of me ) turned to the nearest male doctor and pointed to him , then continued to point all the way around the room at every doctor saying .......' Right , then you, you, you and you' pointing at every single male in the room including the great professor' all need to go onto antibiotics , because if your implying that anyone who plays with themselves will get bleeding from the kidneys , coma's and infections , then boys dont forget to order yourself a high dosage for the rest of your lives ' and sat down the room went silent , when the only female doctor in the room burst into hysterical laughter , which set of a number of her male colleges and it was decided from a lot of rather red faced doctors that this was one of the most stupidest ideas they had in a long time and it was dismissed . So my son has had some strange events in his life , soon after christmas his health improved again and he's not had one bleed since , I do make sure he drinks and drinks all day though especially in the summer months.I'll let you all know what happens at the hospital this week , bye for now AMI. Quote Link to comment Share on other sites More sharing options...
jenwclark Posted February 4, 2007 Report Share Posted February 4, 2007 Oh, Ami, I'm so glad there are people like you in the world! I can just picture that whole room full of doctors sitting there looking sheepish.I'm glad Mike is feeling good. Whatever it was, I hope it was a one time thing. Quote Link to comment Share on other sites More sharing options...
Maxine Posted February 4, 2007 Report Share Posted February 4, 2007 Oh my goodness ami---------------what a crazy thing that was. Now if that were true, could you imagine the pharmaceutical companies that advertise their antibiotics going wild on that one? Could you imagine the advertisements for this new fangled syndrome.I'm sure if this were even remotely possible we would all be hearing about it from CNN--- LOLI'm glad your son is doing better-----and praying he stayes that way.Take Care,Maxine :0) Quote Link to comment Share on other sites More sharing options...
willows Posted February 5, 2007 Author Report Share Posted February 5, 2007 I'm glad you liked my ' cant be this ' incident , I tell you when these doctors come to the end of my bed saying that its this , that and the other ..............just to cover there own backs because they honestly dont know what they are taking about , in fact I can run rings around most of the doctors at our local hospital because there so called knowledge of POTS is ' oh , yer you pass out with it dont you ' oh ....... does this make me mad I must admit it took a bit of courage to speak out with such a lot of doctors there , but seeing the look on the lady doctors face when I said it , made it worth while.In the end she turned the most intelligent one there and came up with something no one had thought of. Unfortunately it probably was what she was thinking of and no one had thought to ask me certain questions at the time , which is sad but Mike and I have put all concerning this behind us both now and dont think or talk about , but it will never happen again, and Mike is now safe.Well I've posted off my brothers 40th present and he should get it tomorrow how I wish we could all be there to see him open it and see his face , I also wrote him a 'slushy poem ' about choosing him as a brother ' well I mean not many people have the privilege or honor of choosing a member of your own family , do you , and we all think the world of him , he's my hubby's mate , my sons uncle and my best male friend and brother .Well I'm off as I've just seen something I want to buy on the shopping channels ............oooooowwww thats a pretty ring................... AMI Quote Link to comment Share on other sites More sharing options...
thejohnsongang Posted February 6, 2007 Report Share Posted February 6, 2007 So gald to hear that your son is doing better. I would have loved to see all the doctors faces when you let them have it with their own words. It would have been a kodak moment for sure. I hope things continue to go well and that they will find the answers soon. Quote Link to comment Share on other sites More sharing options...
willows Posted March 5, 2007 Author Report Share Posted March 5, 2007 Well having been back to the hospital with Mike the consultant has agreed he was very ill when he was in hospital , but now he's better ............... well thats something I could have told him without all the travelling to and from the hospital and the day of wasted.He's no further along with what was wrong with him...............just he was ill So as for now he's written him off coming back for check-ups and has told Mike he looks well , seems to have put on all the weight he lost and is quite happy with the out come..................so another mystery illness to add to Mikes ever growing list of 'we dont know what it is /was or he's got ' .Ami . Quote Link to comment Share on other sites More sharing options...
pat57 Posted March 12, 2007 Report Share Posted March 12, 2007 willow,How old is Mike?he is still "well"?WHAT an ordeal! Quote Link to comment Share on other sites More sharing options...
willows Posted March 12, 2007 Author Report Share Posted March 12, 2007 Mike is to be 16 on the 14th of this month ( had his boys birthday dinner at the weekend) He is well now , thank goodness , but it is a case of just wait until the next event happens , and we know it will , no one can assure us that he will not have another 'major event' and each event is not just a cold or cough , its things like , kidneys bleeding , bowel contractions that make him pass out , he's had glandular fever at 10 years old , pneumonia , bronchitis ..............ringing bells for me again, yet the consultants say its 'just bad luck ' exactly what they used to say about me .And before you say it , they will not test Mike for POTS , dont be daft I live in the UK with the NHS , its a case of ignore, deny and refuse NOT help as much as you can to sort this out, not just Mike but for his parents as well. My son has been ill on and off since he was born , and the likelihood is that it will continue until someone somewhere actually gets of there bums and See's the light ............... this is not normal.Well I'm stuck in the middle of a son who keeps being ill and a hospital who dont give a monkeys, exactly what happened to myself .Ami . Quote Link to comment Share on other sites More sharing options...
corina Posted March 13, 2007 Report Share Posted March 13, 2007 hey ami! our son Christian will be 16 this friday (16th). isn't that a coincidence???!!!hope you and your family will have a great day!!!corina Quote Link to comment Share on other sites More sharing options...
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