AJVDK Posted December 13, 2006 Report Share Posted December 13, 2006 I thought I would drop a line and say ?hello? and let you all know how things are going. Blake?s ( Blake is my 5 year old son, that 2 years a go had a baseball sized mass removed from with windpipe, and around his leg lung.) CT results cam back yesterday, and no new masses! Thank goodness! He still has to under a scope/ possible repair surgery on Monday, to see if they can help his airway open up, it remained mostly crashed even after the mass was removed, they thought as he grew, it would open up, but it has not. Please keep in you thoughts, and prayers.Well we got some good news finally, As many of you knew I been having problems with my cardio, and a few weeks ago, he thought we should pull the PICC, for risk of infection, (even though there is no sign of infection). Also his office went on and on about how I should have out grown this by now as I am 27. (so I guess we are to out grow POTS?) Anyways, my family doctor step in and took the full orders over. I now still have the PICC and am now getting fluids every other day! It?s been helping so much! Now if we can get the migraines under control I would be doing great! But I got to look at it like this, things are getting better, I have a doctor that cares, my family is still fighting right along with me! I guess what I am saying, even thought things are what I wish they where, I am still very lucky!Happy Hoilday! Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted December 13, 2006 Report Share Posted December 13, 2006 It's great to hear your good news. Glad too, that Blake has no more masses. I hope that his airway opening procedure is quick and uneventful!Nina Quote Link to comment Share on other sites More sharing options...
Maxine Posted December 13, 2006 Report Share Posted December 13, 2006 That is wonderful news about your son! I will definately keep you both in my thoughts and prayers.WOW--------------you can really out grow POTS? Where's the paper on that one?----LOL---What happened to me then?---I'm 47---and I wasn't officially diagnosed with POTS until I was 41. Can't imagine where they got the idea that we can outgrow this. Anyway, I'm glad your family Doc took over, and is getting the fluids in you--- Take Care,Maxine Quote Link to comment Share on other sites More sharing options...
Babettegall Posted December 13, 2006 Report Share Posted December 13, 2006 That's great news!!!!!!! Quote Link to comment Share on other sites More sharing options...
corina Posted December 13, 2006 Report Share Posted December 13, 2006 hi amy,hey, that's greeat news you shared! i always LOVE to hear this kind of news. thanks so much for sharing!!! happy holidays to you and your family!!!corina Quote Link to comment Share on other sites More sharing options...
Rachel Posted December 13, 2006 Report Share Posted December 13, 2006 Thanks for sharing! I'm so happy to hear that your family doctor stepped in and helped out. And it's good to hear that Blake is doing well. I pray that his procedure goes well on Monday. Rachel Quote Link to comment Share on other sites More sharing options...
AJVDK Posted December 14, 2006 Author Report Share Posted December 14, 2006 Thanks everyone for the support. The hospital call today, and everything is a go for monday for Blake, so hopfully everything will go well, with no problems! Quote Link to comment Share on other sites More sharing options...
Dizzy Dame Posted December 14, 2006 Report Share Posted December 14, 2006 Amy, I'm so glad to hear things are starting to go your way Hopefully this is only the first of many good stretches for you and your family! Quote Link to comment Share on other sites More sharing options...
JaneEyre9 Posted December 14, 2006 Report Share Posted December 14, 2006 I'm happy to read your good news! Having a good doc and a good family can make a big difference during hard times.Kristen Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted December 14, 2006 Report Share Posted December 14, 2006 It's great to hear some good news. Thanks for sharing this with us. I am glad things are going better for you.Katherine Quote Link to comment Share on other sites More sharing options...
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