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CarmelRob

Meds For Hyperadrenergic Pots

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I'm sure this has been discussed before but I'm in such a bad state right now that I can't do the research to look it all up.

I have hypertensive POTS which I believe is also hyperadrenergic POTS. My cardiologist doesn't really know much about the different types of POTS and what drugs to prescribe for them.

I was on Pindolol which was working fine except now I can't tolerate it because my Raynaud's Syndrome is getting worse and the drug actually exacerbates it and increases my BP!

Which drugs are best for hyperadrenergic POTS without the side effects of exacerbating Raynaud's Syndrome. I'm thinking of trying either Carbedilol(Coreg) or Labetalol(Trandate, Normodyne) since they work on the Alpha recepters.

I'd be grateful for any information on this matter.

Thanks a lot

Robert

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clonidine is suppose to be a good drug for hyperadrengic pots... I take it for adrenaline surges.. my biggest dose of clonidine being before bed.. as i get BAD adrenaline surges at night..

you can take clonidine in pill form or there is a patch also that you can use.. I personally like the patch better it offers a more steady constant stream of meds to your system..

but the pill form helps as well..

good luck to you

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The literature I have read states clonidine and benzos, typically valium.

Although I do better on atenolol and valium. At a much smaller than recommended dose.....

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Thanks for your replies, both of you. Eventually I'll probably try the Clonidine. I'd really like to find a nice beta blocker though since they are probably better for the long run. I loved Pindolol so much with the exception of the effects on my stomach and it actually raising my BP if I take it when I'm freezing.

The local doctors here are amateurs as far as treating POTS goes. Are there any specialistsin the NY area?

-Robert

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There are some listed on this site and the NDRF for the NY area. I have not yet gone to any of them. I believe two of them treat pediatrics only.

Hope you find the right med soon.

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I had good experiences at the autonomic lab at Mt. Sinai, in Manhattan. They treat adults. They put me on a tilt table a couple of times and measured my norepinephrine levels while I was lying down and standing up. They told me that I have a clear case of POTS but that I was managing it well with aggressive use of "conservative measures." None of the nonsense and disrespect that I got at Mayo.

Your case sounds more interesting than mine. Maybe they can help you.

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