Jump to content

Anti-coagulants: Anyone Take One


Recommended Posts

  • 2 weeks later...

I have been on Wafarin for three years after a PE and blood clots in my legs due to LOw proteins S deficiency. I was diagnosed with Pots and OI may 2005. So I really don't know except my pots is worse when my INR is high ( above 3.5). But the symptoms of POTS can also be the same as a stroke or brain annyurism ( Ican't type or spell today). I just found out that I have had a stroke in the paast 6 months andd it caused some damage to the brain and I had no clue. I get POTSY often and migraines too. Be caareful and get your INR regulated.

Link to comment
Share on other sites

What is INR?

I've had transient weakness, but showed no stroke- after ct scan and mri/mra...normal blood clotting. at the time i was told i had hemiplegic migraines, but i think it was just pots limiting blood to brain when upright...I can't tolerate aspirin--to hard on my stomach and ringing in the ears...I was a little disturbed to learn I have some plaque in my left carotid. So I'm trying to eat well and avoid saturated and trans fat. Strokes scare me, as my grandmother had several and I saw what they did to her.

Link to comment
Share on other sites

I also have Protien S deficiency. I take Lovenox during prenancy, etc. But it's fine outside of prenancy (I had a PE in my first pregnancy, about 6wks gestation).

I recently got in touch with a POTS specialist and started treatment. My doctor told me that the thrombo history is one reason why he prescribed ProAmatine, and told me that it will help prevent future clots.

I don't feel more POTSy with more clotting (less p.S). In fact, it's just the opposite for me, but that is a combination of factors bc my p.S def. has to do with pregnancy, and my increased blood volume during pregnancy helps aleviate the POTS.

One strange link I read...that the number one cause of death among POTS sufferers is a PE (very different from the general population).

Link to comment
Share on other sites

I did not think there were any others out there with both pots, and protein S or clots. I too have a filter, take 12.5 mg of coumadin. I take digitek and Coreg. Whats the Pro Amatine do? I have a docs appt soon (several actually) and I like to be prepared.

LInda Joy I have a cousin in MAryland named Linda Joy. That's kind of weird.

Link to comment
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Create New...