LindaJoy Posted December 3, 2006 Report Share Posted December 3, 2006 Hi, everyone,I'm now on Warfarin for a clot. I think you all know that. Anyone on it and does it bother your POTS?Linda Quote Link to comment Share on other sites More sharing options...
pamela Posted December 13, 2006 Report Share Posted December 13, 2006 I have been on Wafarin for three years after a PE and blood clots in my legs due to LOw proteins S deficiency. I was diagnosed with Pots and OI may 2005. So I really don't know except my pots is worse when my INR is high ( above 3.5). But the symptoms of POTS can also be the same as a stroke or brain annyurism ( Ican't type or spell today). I just found out that I have had a stroke in the paast 6 months andd it caused some damage to the brain and I had no clue. I get POTSY often and migraines too. Be caareful and get your INR regulated. Quote Link to comment Share on other sites More sharing options...
mkoven Posted December 13, 2006 Report Share Posted December 13, 2006 What is INR? I've had transient weakness, but showed no stroke- after ct scan and mri/mra...normal blood clotting. at the time i was told i had hemiplegic migraines, but i think it was just pots limiting blood to brain when upright...I can't tolerate aspirin--to hard on my stomach and ringing in the ears...I was a little disturbed to learn I have some plaque in my left carotid. So I'm trying to eat well and avoid saturated and trans fat. Strokes scare me, as my grandmother had several and I saw what they did to her. Quote Link to comment Share on other sites More sharing options...
JAQUIROUIN Posted December 14, 2006 Report Share Posted December 14, 2006 Hi,I use anticoagulation. I use symtrom, its like your medicine.Any doctor say me if my trombosis its for the POTS. I have a cava filter. have a nice day Quote Link to comment Share on other sites More sharing options...
masumeh Posted December 15, 2006 Report Share Posted December 15, 2006 I also have Protien S deficiency. I take Lovenox during prenancy, etc. But it's fine outside of prenancy (I had a PE in my first pregnancy, about 6wks gestation). I recently got in touch with a POTS specialist and started treatment. My doctor told me that the thrombo history is one reason why he prescribed ProAmatine, and told me that it will help prevent future clots. I don't feel more POTSy with more clotting (less p.S). In fact, it's just the opposite for me, but that is a combination of factors bc my p.S def. has to do with pregnancy, and my increased blood volume during pregnancy helps aleviate the POTS. One strange link I read...that the number one cause of death among POTS sufferers is a PE (very different from the general population). Quote Link to comment Share on other sites More sharing options...
pamela Posted December 16, 2006 Report Share Posted December 16, 2006 I did not think there were any others out there with both pots, and protein S or clots. I too have a filter, take 12.5 mg of coumadin. I take digitek and Coreg. Whats the Pro Amatine do? I have a docs appt soon (several actually) and I like to be prepared.LInda Joy I have a cousin in MAryland named Linda Joy. That's kind of weird. Quote Link to comment Share on other sites More sharing options...
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