Aprilmarie52 Posted November 29, 2006 Report Share Posted November 29, 2006 I drink tea all of the time and on special occasions coffee, but I do it in moderation to keep from jumping out of my skin. Quote Link to comment Share on other sites More sharing options...
Sophia3 Posted November 29, 2006 Report Share Posted November 29, 2006 Theobromine and xanthines are also the makeup of caffeine but small amounts get left behind. By bladder irritant I should've said can still make me have to urinate a lot!!Too foggy tonight to explain Emily but will try later, ok/ Quote Link to comment Share on other sites More sharing options...
DancingLight Posted November 29, 2006 Report Share Posted November 29, 2006 Sophia!Thanks, I'll wait for your 'unfoggy' answer! I didn't know if you meant that those chemicals were just bladder irritants or also could have the effects of caffeine in the sense of causing the heart flutters, pounding, tachy, jittery junk that I get. Even in college, before I got 'sick' I could hardly tolerate a coke! I've always been 'unique' Em Quote Link to comment Share on other sites More sharing options...
Sophia3 Posted November 30, 2006 Report Share Posted November 30, 2006 Emily, I had to do some searches and took forever to find a pithy answer for you that was easy to understand.This was the one I found. Hope this helps. So even tho products are decaff, they may still have some of these other -ines in them as well.Caffeine belongs to a group of chemicals called xanthines which include theophylline (used in the treatment of lung diseases like emphysema and asthma) and theobromine. Xanthines stimulate the nervous system and can cause people to feel restless, nervous or unable to fall asleep. Caffeine is exreted in urine as methylxanthine and methyluric acid as a product of metabolizing caffeine Quote Link to comment Share on other sites More sharing options...
Stace915 Posted November 30, 2006 Report Share Posted November 30, 2006 I never drank caffiene and my doc suggested it, the first day I was jittery and now I force myself to drink 1 cup of coffee every morning after I take my meds and its really helps! Quote Link to comment Share on other sites More sharing options...
luckygoat3 Posted November 30, 2006 Report Share Posted November 30, 2006 I can't handle caffine too well, if i drink a little can 8 oz or less I can function early in the AM, but if i drink it at night this is me...Susie Quote Link to comment Share on other sites More sharing options...
jenwic Posted November 30, 2006 Report Share Posted November 30, 2006 I drink decaf iced tea every day. I cannot tolerate any caffeine at all. I have tried drinking decaf coffee ( including Sanka) and they must have some caffeine too because they make me tachy and very jittery, just not to the degree that caffeinated does. Quote Link to comment Share on other sites More sharing options...
Sunfish Posted November 30, 2006 Report Share Posted November 30, 2006 my reply is based on my past experiences rather than present as my current oral intake is essentially nil & my IVs don't come with a caffeine option (hmmm....i think it does exist....maybe i should ask for some caffeine infusions to give me some energy?) but i digress....over my years in dysautonomia land i've never had a problem with caffeine in small/moderate amounts but have never liked coffee (or anything coffee flavored) or dark sodas (coke, pepsi) or black tea so never had regular or large intake amounts. for the most part any i had was from teas with very small amounts of caffeine or chocolate, which i've never eaten in large quantities. occasionally (i.e. a few times a year) i'd have a mountain dew and never noticed a thing - good or bad - with this either, which was obviously a bit higher on the caffeine content.at one point though, probably about five years ago, dr. grubb told me that some of his patients reported being helped by the new energy drinks (red bull & friends), if only temporarily. about the same caffeine content as several sodas or coffees i believe but more condensed. i gave it a shot & did find some benefit, though only for a few hours & then had a bit of a "crash" after. essentially the rapid intake for me felt like an extra dose of midodrine to my system.based on my experience & conversations with dr. grubb & a few other docs, i would postulate that those helped with caffeine may correspond some with those who may benefit at some point from stimulant meds. b/c, like caffeine, these meds (ritalin, concerta, adderall, daytrana, etc) are wonderful for some & horrible for others and, like caffeine, they're stimulants that CAN work as vasoconstrictors & energy-boosters. while i haven't tried or been able to tolerate all of the stimulant meds, concerta was a miracle med of sorts for me for a few years & i wouldn't have been able to finish college or ever work full-time without it.i know that my system seems to be slow/hypo in almost every way where some others are the opposite and for some it's a mix of both. but for me at least the correlation makes sense that my slow/hypo body has, at least at times, benefited from stimulants, either dietarily or medicinally. melissa Quote Link to comment Share on other sites More sharing options...
DancingLight Posted November 30, 2006 Report Share Posted November 30, 2006 Sophia!I'm sorry that you had to go through so much work to find that answer!!!!! I really appreciate it. Maybe I'm not meant to have coffee, even if it is decaf, but someday I'll give it a shot and report back! Em Quote Link to comment Share on other sites More sharing options...
Rachel Posted December 1, 2006 Report Share Posted December 1, 2006 The way I understand, caffeine is water soluable. So coffee is decaffeinated by soaking the beans in hot water. However, this process does not get out all of the caffeine. A very tiny bit remainss. I read an article about this process in National Geographic a year or so ago (Jan 2005?). Also, I found this link on the web that explains the decaffeination process. http://home.howstuffworks.com/question480.htm Hopefully this will answer your question, Emily. Also, note that when coffee is decaffeinated this increases the acidity in the coffee, which can be hard on some people's stomachs. As a pot of coffee is brewing the first of the coffee to drip into the pot will have more caffeine. The last of the coffee to drip in will have less caffeine, but more acidity. Rachel Quote Link to comment Share on other sites More sharing options...
dizzygirl Posted December 2, 2006 Report Share Posted December 2, 2006 nope cant tolerate it at all.. and i used to be a huge!!!! Mountail dew drinker! and once this tachycardia hit full speed ahead.. i stopped drinking all caffeine.. even caffeine in my beloved rees'e BP cups is just too much.. so im to the point now where i can only have a bite of a PB cup maybe once or twice a week.. anymore then that i pay paypay!sigh)))))))))) pots really stinks! Quote Link to comment Share on other sites More sharing options...
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