VJWeaver Posted June 13, 2004 Report Share Posted June 13, 2004 Goofy Slipper Lecture on Dysautonomia: (A DYNA kids event open to adults with dysautonomia)Tuesday: July 13 - 4:30 to 10:00 PM (please arrive early so they can start promptly)Location: WILDWOOD PRESERVE - Ward Pavilion 5100 W. CENTRAL AVENUE TOLEDO, OHIO*Adults are more than welcomed to attend this event and listen to DYNA's informative lecture on dysautonomia. They have 3 well known and highly respected dysautonomia specialists speaking this year. *DYNA would like to know how many adults to expect and they would like a small donation (whatever you can afford) to help cover their expenses. They are limited on space and therefore can only handle so many people - please notify Vickie Weaver at: vjweaver32@earthlink.net if you plan to attend as I am keeping a running list. I will need to know how many from your family at attending and what hotel you are staying at. *Adults are asked to sit in the back of the room and leave the front tables and seats for the DYNA kids.*Directions to Wildwood Preserve - Ward Pavilion from your particular hotel can be obtained on Mapquest.NOTE: Do not use the main park entrance from West Central Avenue - use the East Entrance which is between the main entrance and Cory Road! For information on this location: www.metroparkstoledo.com (click on rental facilities and scroll down to Wildwood Preserve.)*Adults who want to stay at the same hotel (so we can have some casual time together) should book their rooms at:Country Inn and Suites 541 West Dussel DriveMaumee, Ohio419-893-8576 - You need to call this number to reserve a room. *This is not a structured conference for adults. This is a group of adults who just want to get together and attend the DYNA lecture. *The other DYNA events are only open to the kids. *As adults we have an opportunity to help the kids dealing with these conditions. The DYNA parents do like to speak to us and learn about what it feels like to have these conditions. Remember, we must demonstrate a positive attitude in front of the kids. We can also benefit from watching the kids deal with these conditions - we all benefit from each other.*Debbie at DYNA kids has asked me to handle all communications with any adults attending. Please email me directly for any information. My email is: vjweaver32@earthlink.netThank you.Vickie Weaver (adult with POTS) Quote Link to comment Share on other sites More sharing options...
luckygoat3 Posted June 13, 2004 Report Share Posted June 13, 2004 good job vickie! susie Quote Link to comment Share on other sites More sharing options...
VJWeaver Posted June 13, 2004 Author Report Share Posted June 13, 2004 Thanks...Debbie Helped....LOL Quote Link to comment Share on other sites More sharing options...
VJWeaver Posted June 15, 2004 Author Report Share Posted June 15, 2004 Here is the one that has all the information on it. Hope all is doing well.Vickie Quote Link to comment Share on other sites More sharing options...
VJWeaver Posted June 16, 2004 Author Report Share Posted June 16, 2004 I am moving this up so if anyone hasn't been online for awhile they will see it.Vickie Quote Link to comment Share on other sites More sharing options...
VJWeaver Posted June 18, 2004 Author Report Share Posted June 18, 2004 I am moving this up so if anyone hasn't been online for awhile they will see it.Vickie Quote Link to comment Share on other sites More sharing options...
VJWeaver Posted June 20, 2004 Author Report Share Posted June 20, 2004 I am moving this up so if anyone hasn't been online for awhile they will see it.Vickie Quote Link to comment Share on other sites More sharing options...
Vettprsn Posted June 25, 2004 Report Share Posted June 25, 2004 I just wanted to let everyone know Thank for responding to this post.If you every hear of any children out there with out disorders please let them know about DYNAkids. It is a wonderful site for children. Here is the link. www.dynakids.orgHope all is doing well. Vickie Quote Link to comment Share on other sites More sharing options...
VJWeaver Posted June 30, 2004 Author Report Share Posted June 30, 2004 Hi Everyone,I just wanted to update you on the DYNA Conference. I may not be able to attend as it looks like I am getting a Pacemaker put in so I wanted to make sure you all knew where the lecture was being held in case I am out of communications with you. If you are planning to attend you should have notified me by now. Plan to arrive at the Ward Pavilion at Wildwood Preserve: 5100 W. Central Avenue, Toledo, Ohio before 4:30 PM on July 13. Adults should sit towards the back and leave the front tables for the DYNA families and kids. All other events of the DYNA Summer Chill Conference are private and for the registered DYNA kids only. Children must be registered and on the attendance sheet with DYNA by now. Space is very limited and they will not be able to accommodate walk in's.Have fun and enjoy to the people that are attending. You wil find it real interesting.I did last year.Vickie Quote Link to comment Share on other sites More sharing options...
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