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cardiactec

Gastroparesis/dysmotility

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how many here have gastroparesis? i think i have had this for about 6 years but was just recently diagnosed by nuclear study. i had a gastric emptying study (a four hour study) a week ago and just got the results showing that at four hours i still had 40% food content still sitting in my stomach (normal is more than 50% out of the stomach, if not ALL food out of the stomach at an hour and a half).........my doc said i have severe motility issues and i really dont want to take any medications for this because the one's i have tried have given me TERRIBLE side effects..........

just wondering who here has been diagnosed with gastroparesis and what you do to manage your symptoms? also, are any of you thinking about getting a gastric pacer? my GI doc is referring me out to a specialist who implants these devices in severe cases of paresis.....

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I've already mentioned before that I have gastroparesis. Mine has never been bad enough to consider a pacing device.

Nina

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I have gastroparesis also. Mine was horrible nausea for 2yrs. It seems to be getting better. It waxes and wanes so I'm not sure if I'm just having a good period but since starting Flornief and Wellbutrin the nausea lessened although not completely gone.

Have you tried meds to manage POTS ? Just wondering because I know of another person who is now managing their illness of GP after getting treatment for his NCS.

Hang in there.

go to gastroparesis at yahoo groups. or www.G-pact.com maybe you'll find some answers there

Dayna

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Guest sonotech

My GI problems are getting worse each month. I know that soon SOMETHING will have to be done about it. I have nearly stopped eating and though my nausea is better, I suffer severe abdominal pain DAILY. Let me know what you doc says, or if you decide to go through with the procedure.....I would love to know if a device like that would help!

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I have to agree that going the medication route is something to be investigated with your physician--my issues are better while on a low dose of an SSRI --and are way worse when off the SSRI. To me, the relief I get from this small amount of medication has made a huge difference in my daily life.

Nina

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Hi I myself and on jejunostomy tube. I have been diagnosed with this for 2 years now and I keep hoping one day I will wake up and I will not start my day out throwing up. It does not matter if I eat anything before bed or not. I always have an abundance of acid and bile. I already take 20mg 2x daily prilosec and zantac 150mg 2x daily. And whenI refer to eating I eat nothing solid. Or as one of my GI asked me was if I can eat knife food, fork food or spoon food. I thought that was a cool way of looking at it. All I eat is spoon food with NO SOLIDs!

Medicine wise. Nothing has really really worked for me. I tried regllan. EWW that stuff was bad it made me very mean. To bad too since i had no other of my usual side affects from it. I tried Zelnorm, protonix, domperidone, and nexium wich ofcourse I had bad reactions too. I do take e-mycn off and on. It will work for a while and then loose it affects. However this last time it didn't have really any positive affect. I was a bit disapointed.

My Gastro wanted to try me with a botox injection. However I am refusing it due to my adverse reactions to SO many medicines. Honestly I have two fears. 1. of dying and 2. doctors not listening to me about medicines. Oh yah.........I actually have a third fear 3. Spiders LOL

how many here have gastroparesis? i think i have had this for about 6 years but was just recently diagnosed by nuclear study. i had a gastric emptying study (a four hour study) a week ago and just got the results showing that at four hours i still had 40% food content still sitting in my stomach (normal is more than 50% out of the stomach, if not ALL food out of the stomach at an hour and a half).........my doc said i have severe motility issues and i really dont want to take any medications for this because the one's i have tried have given me TERRIBLE side effects..........

just wondering who here has been diagnosed with gastroparesis and what you do to manage your symptoms? also, are any of you thinking about getting a gastric pacer? my GI doc is referring me out to a specialist who implants these devices in severe cases of paresis.....

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i have been taking Reglan and it seem to help me a lot. Not other constipation or abdominal distension med has helped as much as Reglan. No side effects yet, but I am afraid they will eventually happen.

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I have had gastroparesis for about two years now..I have Dismotility of upper and lower GI tract.

The drugs tried on me were Reglan,Levsin and a few others.

I discontiued due to long term effects. One thing that was suggested to me was aloe vera juice.

Bee

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