JoeJack101 Posted October 1, 2006 Report Share Posted October 1, 2006 I think I have POTS, and I know I have Mitral Valve Prolapse Syndrome and I know I have dysautonomia. I have a HORRIBLE drug sensitivity that is beyond words... What would you do if it was literally killing you are ruining your life? I HAVE to get rid of this horrible drug (& herb) sensitivity, so please help me find a way. By the way, this sensitivity is NOT allergic, the effect of the drug/herb is just exaggerated 1000x's or so. Quote Link to comment Share on other sites More sharing options...
juliegee Posted October 1, 2006 Report Share Posted October 1, 2006 It sounds like you've had a reaction to more than one drug. Which one specifically is giving you a problem? I know many with dysautonomia have to start with micro-doses and wait a week or so before upping the dose to a more therapeutic level. for instance when my son started florinef, he started with 1/4 of a .1 tablet. Ten days later, he moved up to 1/2 of a .1 tablet. He eventually worked his way up to .2mg or 2 full tablets a day. Going slowly gave his body a chance to adjust and respond to the medication. All my best-Julie I think I have POTS, and I know I have Mitral Valve Prolapse Syndrome and I know I have dysautonomia. I have a HORRIBLE drug sensitivity that is beyond words... What would you do if it was literally killing you are ruining your life? I HAVE to get rid of this horrible drug (& herb) sensitivity, so please help me find a way. By the way, this sensitivity is NOT allergic, the effect of the drug/herb is just exaggerated 1000x's or so. Quote Link to comment Share on other sites More sharing options...
kmpower Posted October 1, 2006 Report Share Posted October 1, 2006 Dear JoeJack,I am so sorry about your terrible difficulty. It may well be that you do not detoxify drugs properly in your liver. This can be tested by a comprehensive detox profile (a blood/urine test) available through your doctor from several laboratories.Most drugs are detoxified in 2 stages. Think of stage 1 as a preparatory stage and stage 2 as sort of a coin-sorter where different types of drugs are sent down different chemical pathways. Actually, there are thousands of different enzymes, but they fall into these general categories.Some people have a problem (genetic or acquired) in one or more pathways. Occasionally stage 1 works too hard or not hard enough. Often stage 2 pathways are sluggish and a drug might become diverted to a different pathway.If a drug (or any other chemical our bodies take in or produce) is stuck between stage 1 and 2 (too much stage 1 and/or not enough 2), the in-between metabolites can be much, much more toxic than the drug itself. Or if stage 1 isn't working well, the drug stays in your system much longer than in other people and you need less or a reduced frequency of dosing. The good news is that many problems are treatable with taking in more nutrients needed by the pathways which are sluggish.I hope this isn't too confusing. PM me for a link to the kind of doctor who can do this test if yours can't or won't. I don't think it is that expensive.OLL Quote Link to comment Share on other sites More sharing options...
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