jenwclark Posted September 9, 2006 Report Share Posted September 9, 2006 I'm new to this forum, although I've been poking around the DYNET website for several months. I don't have to tell you how wonderful it is to hear other people sharing similar experiences. The "You know you have dysautonomia when..." posts had me laughing out loud. Thank you so much!I'm in my early 30s, and I was diagnosed with POTS in January. I am able to take care of myself, but going out of the house is a major exertion, and I'm not currently able to work.Looking back, I had my first glimmers of POTS (fatigue and dizziness) about 20 years ago, but for a long time I thought I was just a bit lazy and unambitious. My freshman year in college, the fatigue got so bad I had to drop out of school, and after a year or so I was diagnosed with CFS. I puttered along with familial support, taking one or two courses at a time, and I did eventually finish my degree. Then, in the spring of 2004, things got significantly worse, and I started another round of visiting specialists. I was really lucky and saw a few doctors who took my problem seriously and really worked to figure it out. One of them ordered a tilt table test and gave me the POTS diagnosis.Since then, I've tried Florinef (which didn't do much for me), Inderal (which keeps my heart from racing, but doesn't help the energy), support stockings (which are wonderful, and let me do 2 or 3 errands at once instead of limiting myself to 1 a day), and I've just started Midodrine.Again, thanks for sharing all the wisdom.Spike Quote Link to comment Share on other sites More sharing options...
SunsetParadise49 Posted September 9, 2006 Report Share Posted September 9, 2006 Welcome Spike! Quote Link to comment Share on other sites More sharing options...
Ernie Posted September 9, 2006 Report Share Posted September 9, 2006 Hi and welcome aboard. Quote Link to comment Share on other sites More sharing options...
Lulu Posted September 9, 2006 Report Share Posted September 9, 2006 welcome, quiet spike! thanks for sharing your story i hope you continue to find answers and support here on the forum. and of course, i wish you and everyone good health and bright days!lulu Quote Link to comment Share on other sites More sharing options...
persephone Posted September 9, 2006 Report Share Posted September 9, 2006 Hey Spike, happy to be of servie with the you know you have pots when.... thread.What inspired the name? I'm intrigued... Quote Link to comment Share on other sites More sharing options...
Dizzy Dame Posted September 9, 2006 Report Share Posted September 9, 2006 Welcome! It sounds like your on the right track by trying different meds. Good luck with the midodrine, it made a huge difference for me so hopefully it'll help you as well!-Lauren Quote Link to comment Share on other sites More sharing options...
jenwclark Posted September 9, 2006 Author Report Share Posted September 9, 2006 Thanks for all the welcome messages.What inspired the name? I'm intrigued...When I was 14, my brother-in-law thought I was too sweet and harmless for my own good, so he started calling me "Spike" in hopes that I would grow into the name. I did, in my own way. I've kept the nickname, because it does describe one side of my personality, but the "quiet" still describes what most people see. Quote Link to comment Share on other sites More sharing options...
bttrflyamby1981 Posted September 10, 2006 Report Share Posted September 10, 2006 Welcome Spike!Did your name have anything to do with Land Before Time? Welcome, I hope you find what you need here.Amber Quote Link to comment Share on other sites More sharing options...
persephone Posted September 10, 2006 Report Share Posted September 10, 2006 Welcome Spike!Did your name have anything to do with Land Before Time?YAY! I love that film!!! Quote Link to comment Share on other sites More sharing options...
AJVDK Posted September 10, 2006 Report Share Posted September 10, 2006 Just wnated to drop a line and say welcome! Quote Link to comment Share on other sites More sharing options...
Guest dionna Posted September 10, 2006 Report Share Posted September 10, 2006 welcome aboard! i took inderal (propanonal) first and it was horrible to me... then midodrine... then florinef... i didn't find much relief but i certainly hope that you do! take care!dionna Quote Link to comment Share on other sites More sharing options...
jenwclark Posted September 10, 2006 Author Report Share Posted September 10, 2006 Did your name have anything to do with Land Before Time?Nope. No movie tie in. I'm not sure if I've even seen Land Before Time, but if there's a Spike in it, I'll have to add it to my movie list. Quote Link to comment Share on other sites More sharing options...
corina Posted September 10, 2006 Report Share Posted September 10, 2006 hi spike,welcome around. you've found yourself a great group of people. ask whatever you like, there are lots of people who can help you (if needed of course!).corina Quote Link to comment Share on other sites More sharing options...
morgan617 Posted September 12, 2006 Report Share Posted September 12, 2006 Welcome spike, I'm slow on the gun here, have been a bit under the weather....Hope you find things that help you here... Quote Link to comment Share on other sites More sharing options...
jenwclark Posted September 12, 2006 Author Report Share Posted September 12, 2006 Welcome spike, I'm slow on the gun here, have been a bit under the weather....Isn't it great to have a whole community of people who understand that? :-)I hope the pacemaker helps and your recovery is smooth.Spike Quote Link to comment Share on other sites More sharing options...
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