art3 Posted September 6, 2006 Report Share Posted September 6, 2006 hi Im new here and very frustrated with my recent diagnosis. yal are pros. help me if u canIm 26 yrs old and have some gi motility issues.Ive been having some fatigue etc but then after my plicator implant and removal my issues got worse. Im more faitgued, lightheaded, chest tight, harder time sleeping etc.. a dr diagnosed me with a slight case of POTs. he did a tilt table which showed some bood pooing. he gave me flornef-which was a nightmare. never have I been so ill on medicine. I felt worse-fatigued, terrible leg and arm weakness etc.. with other things to be done I had to go off it. Im so sick of this. what else can on e do. I mean my pots dr is a cardio, so wont he just give me more cardio drugs? the only thing that helps a bit is klonopin in the morning. I dont know why. Im not familiar with all the treaments. is physical therapy good? what kind? antidepressants? the dr says if my gerd wasnt so terrible, the gastroparesis wasnt so bad and the bowels not so raw things would improve some. Imseeing a surgeon on alleviating something here. any advice on all this? I have very poor sleep-10pct REM. and the motility stuff-came after food posioning in '01. I need major help here...thanksart3 Quote Link to comment Share on other sites More sharing options...
bttrflyamby1981 Posted September 6, 2006 Report Share Posted September 6, 2006 Hi I just wanted to welcome you. Amber Quote Link to comment Share on other sites More sharing options...
Guest dionna Posted September 6, 2006 Report Share Posted September 6, 2006 how horrible. i am sorry that you are having such a hard time. personally i am not all that familar with all that you are describing. i do have POTS, NCS and migraines so i know how hard that can be. i have stomach issues to but no diagnose yet, i just need to get rid of my pride and go to a doc. just to let you know you aren't alone with the dislike of florinef. same here. of course i was on 8 prescription drugs at the same time as i was the florinef. some other meds they may try you on from cardio are beta blockers ( a multitude of different names and kinds are available ), midodrine, and mestinon. perhaps not all at the same time though like i was. that was crazy.but basically i just wanted to say welcome to the forum! ask away i am sure someone can give you good advice or atleast let you know you aren't alone.take care of yourself.dionna Quote Link to comment Share on other sites More sharing options...
Clairefmartin Posted September 6, 2006 Report Share Posted September 6, 2006 Hello! Wanted to say welcome and there is great info on the main page at potsplace.com about treatment options. I hope you feel beter soon and find the right drugs! Quote Link to comment Share on other sites More sharing options...
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