Room Spinning When I Open My Eyes In Morning

[MNsue]

I have been having a bad POTS weekend. I had about 3 night of tachycardia most of the night, then yesterday morning after a better night's sleep, I open my eyes, and the room won't stop spinning. I close my eyes and think this is strange, and it keeps going and going. I finally sit up in bed and it is better. I was a little off balance in the morning, but as the day progressed it got better.

I had the same thing happen this morning. I am so fatigued, I don't want to get out of bed and when I do the tachcardia starts up.

OH how strange. This is the first time this has happened to me. I know others are dizzy, but I thought it was while they were upright not laying down.

Thanks for all your ideas.

Rhonda

[corina]

rhonda,

i have that happen too. not all of the time, but every now and then. i can't leave my bed and am not able to sit up until it leaves, which is usually around noon (please don't ask me why, i don't have an answer ).

it makes you feel VERY sick and not able to function at all (not even turning around in bed).

sometimes it stays a few days (2 or 3), other times it stays just 1 day.

i hope this passes soon,

corina

[kmpower]

Hi WW2,

Did the room spin in the same direction both times? Which direction? Were you sleeping in the same general position?

Two things might be happening (well, more of course, but I can think of two). When the room seems to spin in one direction, your eyes are usually moving to the other direction (tiny back and forth movements called nystagmus, but faster in one direction). Different things can cause it, but if it is in the morning and gets better with time and easy movement, it can be from inner ear fluid movement or stasis from being in bed a long time -- especially if you have some fluid/sinus problems.

Or being still will reduce the neuromuscular stimulation of the brainstem and this has an effect on your sense of location in space, spinning, etc. -- especially if you have neck problems.

If it persists, a good neurologist or vestibular specialist might help get a handle on it.

It is one of those miserable things which feels bad, but doesn't show (like so many POTSy things). I hope it goes away fast all by itself.

OLL

[BEE]

Definitely look into the inner ear approach..a sign of spinning while laying down. I had that after having been diagnosed with POTS,attributed it to the POTS and it ended me in the hospital for a week..I think the term is Labrynthitis. But definitely get it schecked out it is no fun!!

Bee

[Jersey Girl]

I had this for almost a year when I was initially ill. I was afraid to turn over in bed. I had all sorts of tests and eventually had 6 weeks of vestibular rehap, but then one neurologist told me later, it wasn't really vestibular, he didn't know what it was. The rehap only helped a little, but I really had POTS which was undiagnosed at the time. Martha

[persephone]

I've got it at the moment- itseems to have been triggered by a UTI and some antibiotics. I woke up the other morning and room was actually moving- I had to shut my eyes it was so bad. I also couoldn't physically sit myself up, I had to get my mechanical bed to sit me up instead- and then I was reallyshortof breath. I still don't know exactly why this is happening though it is getting better. Hope you get well soon

[juliegee]

The term for the "room spinning" is vertigo and supposedly not related to POTS. I had an attack of vertigo about 25 years ago and it was awful. I fell to the ground and had to crawl- couldn't walk. Google "vertigo" and see what you can find. I think it is a problem if the inner ear. It often comes with a virus and then goes away. I hope you feel better soon.

Julie

I have been having a bad POTS weekend. I had about 3 night of tachycardia most of the night, then yesterday morning after a better night's sleep, I open my eyes, and the room won't stop spinning. I close my eyes and think this is strange, and it keeps going and going. I finally sit up in bed and it is better. I was a little off balance in the morning, but as the day progressed it got better.

I had the same thing happen this morning. I am so fatigued, I don't want to get out of bed and when I do the tachcardia starts up.

OH how strange. This is the first time this has happened to me. I know others are dizzy, but I thought it was while they were upright not laying down.

Thanks for all your ideas.

Rhonda

[persephone]

I think it's hard to distinguishe between dizziness due to hypotension and dizziness due to vertigo inpatients with dysautonomia. It may appear to be one thing, but could easily be another! My ears are fine now- but I know mybp was bombing out at the time.